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Showing posts from 2024
  I "follow" God on Facebook. It seems ridiculous, but it's not. I love the posts I see, and this one hit me tonight. I need to see this every day somewhere. Maybe tape it to my bathroom mirror, my fridge, next to my laptop, I don't know. Everywhere. My inner struggle and happiness over the past couple of years about myself is the hardest battle I've ever faced, and it's mind-blowing that I even have to talk to myself about my daily purpose and to quantify what I'm doing every day. It doesn't matter. JUST LIVE. JUST ENJOY. AND KNOW THAT WHAT YOU'RE DOING MATTERS, WHETHER IT'S HELPING SOMEONE OR DANCING TO MUSIC. WHETHER IT'S WRITING A LETTER OR CLEANING THE BATHROOM. IT'S LIFE!! STOP OVERTHINKING AND JUST DO!! God    ·  There are many great people in this world but none of them are you. You're meant to be here. You're doing fantastic. Keep up the great work and have an excellent rest of your day.

Testing Concerns

 I'm scheduled for a right heart catheterization on April 15th. I haven't had one since I was 2 years old. Both of my Cleveland doctors have suggested having a baseline RHC within the past year, especially if I were ever to start a transplant journey. I know what the test is like, but I also don't know what the test is like. I know they are done thousands of times a day all over the country, and I know my Cleveland cardiologist will be the ONLY ONE touching me because she doesn't let anyone else touch her congenital heart patients. But.....I am scared. I admit that. It's a test I haven't had done since an age I can't even remember it, so I don't know what to expect. I am trying my best to not focus on it, since it's over a month away. I keep telling myself that I will be in good hands, I will be with my best friend who is taking me, it's not a very long procedure, and hopefully it will provide some news my doctors haven't had to go on conside