Monday, November 17, 2014

Time Goes By So Fast When You're Not Blogging!

I don't even know where to begin with this post. I haven't really done anything blog-related since April. I'm not even reading the blogs I had saved on a regular basis. I have always been like this, even with my own diary/journal growing up. I go for months blogging often, and then I suddenly stop. I don't sit down and find the time to put down my thoughts, and it's such a shame, because I love to go back and read old posts and remember things that I found important. So, I thought I'd at least write a little today. Maybe I'll continue?? Maybe not?? lol

Life has been treating me well. The summer flew by too fast as usual, and now here it is, almost Thanksgiving, and the snow is flying around the area already. Winter has seemed to descend upon almost the entire country in the last week, and Fall isn't even over yet. I'm so not ready for this!! The only time I am ready and willing to see snow and cold temps is around Christmas!! And then I'd like it if we could go back to spring/summer weather, thank you very much!! lol

It is PH Awareness month, and I've been trying something different on Facebook this year. I've been coming up with more personal facts about PH, rather than just the actual facts. I'm labeling it "Real Life PH Education." I think it's being appreciated by those who are actually reading them. But, I have to be honest. I've been doing awareness month for over 10 years, and it's getting so monotonous. I don't mean that to be a slap in the face to any of my PH phriends or the PH community. It's just that, trying to post facts or thoughts about PH and what it entails, and getting tons of "likes" and/or comments from those living with the disease? It disappoints me a bit. Am I even reaching those who DON'T live with PH? I do realize that Facebook is not the only way to educate about PH!! Twitter isn't either. I didn't have enough energy really to go out into the community this year and try to spread awareness that way (although I did participate in a tv interview recently, and was seen on the air last week!). I guess maybe I need to put more effort into how to reach others, and maybe I'll be more prepared for next November when awareness month comes again.

The holidays are coming up quickly. I've always looked forward to Thanksgiving especially, and this year I will be going to Canada to celebrate. lol Joanie is having dinner, and I think it'll be nice! I'm not sure what food to expect yet. I'm imagining there will be Italian as well as the turkey. I'm curious as to how her house looks like since it's been so long since I've seen it last, and much of the downstairs was unfinished. I imagine it's exciting to have your own house built, but such a lot of work trying to get it all decorated how you'd like it!

Well, The Voice is coming on soon, so I think I'll end here for now! K. got me addicted to the show during the 2nd season, and it's rather nice to have something we like watching together. Even when we are not actually together in the same house. lol I will hopefully not stay away from posting for so long again! Until next time!

Monday, April 28, 2014

Euan's Favorite Place

Euan used to love going to Port Dalhousie Marina in St. Catherine's, Ontario. When he passed away, his family and friends got together some money in order to have his favorite bench dedicated to him. Last summer, when K. and I ventured into Canada to visit Niagara On the Lake (a very beautiful and fun little place to go!), I asked him about going to Port Dalhousie to see Euan's bench. He agreed that we could do it, and we did in July. 

As we got into the area and tried to figure out where to park, I started getting really emotional and a little shaky. When I got out of the car, the first thing I heard was bagpipes. At the marina, there were two very long piers with benches all along the way. The pier across from us was where I heard the bagpipes. I saw a gathering of people following the bagpiper with balloons and other things, and so I knew they must have been honoring a loved one. But the bagpipes hit me. Euan was born in Scotland. I found it incredibly ironic that on the day I was able to visit his bench, that a bagpiper was there at the same place, and the same time! I completely took that as a sign that Euan knew I was there. I had tears even before I found his bench!

K. and I started walking on the pier closer to us and where we had parked. I had been told where to find Euan's bench by a dear friend of his, so we started trying to find it. Many of the benches had plaques on them in dedication to someone. My heart was a little racy as we were looking, and then suddenly, there it was. I sat down and started crying a bit more. I read the plaque on the bench: 


It was such a fitting tribute to Euan, since no matter what he went through in life, especially with his health, he tried so hard to just find happiness out of anything. That was just one of the many ways I felt so connected to him, because I often try to do the same myself. 

K. took a picture of me on the bench so I would have that memory, and then he sat with me and I shared some stories about Euan with him. We also walked along the pier for awhile, enjoying the beautiful day and the water around us. I swear, we are water people!! lol  We both love being by the water a lot! I can't tell you how much it meant to me for K. to bring me to see Euan's favorite spot. I'm very lucky to have him in my life!!




We saw the bagpiper leading the group of people back from the very end of the pier, where we could hear them doing some kind of tribute before releasing balloons. 



Friday, February 28, 2014

Yes, I DO Exist!

It's been almost a year since I last blogged. I just didn't know what to write sometimes, and then when I thought of something, I would forget, or just felt too lazy to post. I'm hoping I can feel inspired to write again more on a regular basis. Even once a week would be nice. lol

So much has happened in the last year. About this time a year ago, my family was dealing with my mother's health that scared all of us into thinking we might not see her here by year's end. Things have gotten better, though. She is much better than she was last year, but still has some things to work on. I'm amazed at how much diabetes can become a huge issue quickly. It's a very scary disease to have if it's not being controlled. And since it can be inherited, I try to do everything I can to make sure I do not develop it myself.

K. and I are still together. We had a nice summer together, kind of quiet compared to the first summer we had and we got to do so many things that were new to me. He had a big birthday in July (50!), though, and we took a little road trip to Erie, PA to go to Presque Isle, a place he'd always wanted to see. It is a huge island with so many different beaches, and we drove around and stopped to see several of them for hours before heading to our hotel to relax for a bit.




After getting freshened up, we headed to downtown Erie, right on the waterfront, for a restaurant K. found that seemed like a good place to eat. And it was!! We sat outside on the patio and enjoyed some drinks and the view before our dinner arrived. Afterward, we headed to a tower at the end of the pier to see some fantastic views of the lake before heading back down and enjoying a gorgeous sunset. It was a nice little getaway!









For my birthday in September, K. took me to go on the boat ride of the Erie Canal Locks, and that was pretty neat! It was a beautiful day for it, nice and sunny and warm. I was a little worried about feeling queasy on the boat ride, but I didn't feel anything at all, maybe because there were many other passengers aboard. It was a great experience!











In October, we took a little trip to Cleveland since I had my appts with my PH specialist and cardiologist, and squeezed in so many fun things to see. First we went to the Museum of Natural History: 




After that we went to the Modern Art Museum, which was rather interesting!! K.'s favorite exhibit was the hall of armor!





We were able to drive an hour south of Cleveland to see the Football Hall of Fame in Canton, OH the Sunday we were there. K. thought I might be a bit bored, but actually, I liked it! I am fairly new into football, thanks to him explaining much of how the game works to me. lol It was neat to read about the history of the league and how it has evolved since it began. And of course, all the memorabilia was cool! 








My appts at the Cleveland Clinic went well. I saw a different PH specialist, and will most likely stick with her from now on only because the PH doctor I had for years doesn't really see PH patients anymore. I also saw my cardiologist, and both of them said I'm stable and to come back in a year again. It's nice to be able to do that, as long as I'm doing well! 

Tuesday, the day after my appts, we went to the Rock & Roll Hall of Fame! Now, I had been there the first time I went to Cleveland, but I was definitely willing to go again. I realized that they must change the exhibits around often, because some of the stuff I did not remember seeing. Of course, I went at least 10 years ago the first time, so I would be surprised if I remembered much anyway! lol The special exhibit when we went focused on The Rolling Stones!






The following morning, we made one more stop before heading home, one that I was SO EXCITED about making!!! I've been going to the Cleveland Clinic for about a decade, and in the last 5 years at least, I have always wanted to see the house from A Christmas Story. It's one of my all-time favorite Christmas movies, and Christmas just isn't the same if I haven't watched it at least twice!! Of course, my sisters and I know almost every line in it!! I never realized how close it actually was to the clinic! K. and I arrived there in the morning a little before tours officially started. We browsed the gift shop for awhile until the first tour was ready to go! The gift shop is across the street from the actual house. Our tour guide gave a history of the house and how it came to be included in the movie. It was so interesting!! Afterward, we were allowed to tour the house on our own, and allowed to take any pictures we wanted! When we were finished, we crossed the street to another house that had artifacts and props from the movie. It was one of my favorite parts about going on our little Cleveland trip. I felt like a little kid in a candy store!! lol












I suppose I will end this post now. It's pretty sad that I started it over a month ago. lol Every time I continued writing, I thought of something else I could share, so I know a few more posts will be created pretty soon! I hope!!