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Showing posts from February, 2011

A Rare Disease Indeed

Today was Rare Disease Day. I'm sharing this link for people to read about pulmonary hypertension, which is one of 7000 known rare diseases around the world. While PH is only one of 200 rare diseases that are treatable now, it is still misdiagnosed and unknown by too many people, including many doctors and nurses. I am hoping that one day soon, this will change!!

http://www.businesswire.com/news/home/20110224005381/en/Rare-Equal-Pulmonary-Hypertension-Unknown-Diseases-Impact

I had a rather busy day of doing laundry (ended up getting 4 loads done), washing dishes, and waiting for the oxygen guy. I was tired when I started everything, but I wanted to get it all done. So, I was exhausted by the time the late afternoon got here. I took a nap, but it didn't seem like it was long enough before I needed to get up to start dinner. My evening has been relaxing, though, and I'm definitely ready for bed!

Whoa, Craziness!

Well, Mandy and I did venture out tonight to see Black Swan. I left to pick her up around 6:45, and it was snowing quite a bit. AGAIN. By the time we got out of the movie, there was an inch or snow on my car, which Mandy brushed off for me. We went to Chili's afterward for dessert and margaritas, and when we got back outside, another inch was on the car. So I'd say within the past 2 days we almost have a foot of snow. I sure hope it's over with, but I'm thinking I'm not going to be right about that.

Black Swan was a good movie, but kinda crazy! Natalie Portman sure played crazy well. I think she'd deserve Best Actress for the Oscars tomorrow night. Not sure if the movie will get Best Movie, though. I think that honor should go to The King's Speech. But to be fair, I have only seen two of the films nominated for top Oscar awards, so maybe there's another movie that deserves it more. I have to say that I do recommend these two movies! They are drastically…

Sick Of The White Stuff

Another predicted snow storm was set to arrive by late Thursday night into Friday. When I woke up at 7am to take Revatio, I squinted out the window to see if we got anything, and I could tell that there wasn't anything to speak of! I figured the weather people got it wrong yet again, until I woke up on Friday around 10 and took another look. I could hardly see out my windows because there was snow plastered up around the sills. When I got my contacts in, I could see it snowing, and sure enough, the storm had arrived, hours later than it was supposed to come. Booo!! I've had it up to HERE with winter, and who knows how much more we have to tolerate of the cold and the white stuff?? By the time the oxygen guy had arrived to fill the tanks, we had around 8 inches, so he called me to ask if anyone was coming to shovel my front sidewalk. Usually, my dad will get up earlier on Fridays to shovel everything if there's snow. But when he went to work around 7, there wasn't anyt…

Wedding Bells

My youngest sister is getting married in September. Today, she had an appt at David's Bridal to try on wedding dresses. We got there and it was absolute zoo!! If I had to guess, I'd say there were at least 80 people trying dresses on during the time we were there, which was almost 3 1/2 hours. It was just crazy! Joan got assigned to a lady who would help her find dresses and bring them back and forth, etc. So we went browsing for a bit. I think when she had about 4 or 5 dresses, the lady (I can't remember her name!) asked Joan to start trying on dresses since there wasn't a lot of space in the changing room for a ton of dresses. So we all followed Joan and the search for a perfect dress started! We had pulled dresses she thought she might like, and we also had some as something silly. For example, a dress we called the doily dress. It kinda looked like a doily! The funny thing was, when she tried it on, we all kinda liked it! She even tried on a size that fit her bett…

Missing

Yesterday (the 15th) was a little hard, because a year ago that day was the last time I had a very long conversation with Euan. I still remember much of it, the laughter we shared, and the hope for the future after he would get his heart transplant. We talked for a very long time before he had to go. We promised each other we'd write, an actual ink-on-paper letter, because we were both thinking how people never write letters anymore. I did write that letter and sent it to him, which he received a couple weeks later (I still don't know why it takes so darn long to get a letter sent to Canada!). I never got one back. While I understood that he wasn't feeling all that great in the last month of his life, I will always wonder if he actually started one but never got to finish. Or if he just didn't know how to reply to what I had written. I'll never know.

Today while drying my hair, I completely broke down. I haven't done that in awhile. I guess the coming of the one…

Love To All

Valentine's Day ended about half an hour ago here. It's not a day that I dread too much anymore, but quite honestly, it's just another ordinary day for me. There are so many people in my life who I love tremendously, so I've changed my thought about this day only being meant for people who are in love. My family, my friends, and my phamily are the people who mean so much to me, and that's what keeps me going. Maybe some day I'll have that special someone. Maybe I won't. It does nothing for me to dwell on the fact that I'm single. I love it most days. And there are days when I really do wish I had someone. But if it's really meant to be for me, it'll happen when it's supposed to happen!

Accomplished Or Stupid?

I decided this morning that instead of exercising, I would do laundry. This may seem kind of silly to some people, but since I have to go up and down the stairs to the basement several times to do the laundry, it makes a lot of sense to me. Someone on Facebook said they don't know how I do the stairs and carry the laundry basket, and don't I get very short of breath? Then she said I was PHenomenal! Well, I'm not too sure about that. lol Going down the stairs is rather easy for me. It's going up that is the killer. And carrying a load of laundry doesn't make it easier, but I seem to do ok. I think for me, it's the amount of times I need to go up and down. Bring one load of laundry down, put it in the washer, go back up. Bring another load down when the washer is done, put the clean clothes in the dryer, the dirty ones in the washer, and go back upstairs until that load is done. Then I must trek back down there to put the clean ones in the dryer with the OTHER c…

Still Pondering

Just as I was almost ready to make a decision on the stuff I've been trying to figure out in the last several weeks, another discussion with some people made me rethink things yet again. I'm not as upset about everything as I was when all this started. Things will work out the way they are meant to be, it's just taking a lot more time than I thought it would trying to work it all out.

Last weekend, the temps "warmed" into the 30s. I had wanted to go out with my parents to Sam's Club and Wegman's to get stuff for Mittens on Saturday, but it ended up snowing quite a bit, and it was just too bad out to drive there. So, we went on Sunday. We got to Sam's Club, and as I waited for my mom to pay a bill, I discovered from watching one of their 20 tv displays that the club had free wifi. I took out my new phone to figure out how to hook up to it, and I did! As if I really need to look things up in the middle of Sam's Club, but I thought it was cool! We wan…

A Billion Snowflakes

The biggest storm to hit the USA is happening between today and tomorrow, and so many people will be effected. I think I heard on the news last night that 32 states will be hit by the severe weather. Here in Western NY, it's not that big of a deal, since winter treachery is something we are used to, even when we get a ton of snow. But for the areas that aren't used to seeing so many of the white flakes, and the cold temps, I feel a bit bad for them. I just hope so many will be safe and warm until this storm rides out.