Showing posts from August, 2007

I'm Hitting The Road!

My mom and I are leaving tomorrow for a mini-vacation! We are going to Horseheads, NY, where my mom grew up. It's going to be a great time, since many of my aunts and uncles are going to be there as well. My Aunt Jane and Uncle Bob are both turning 50 this year, and their daughter, Ryhan, is throwing them a surprise party on Sunday! She's been planning this for over a year, and apparently they have NO CLUE!! So that's the biggest reason my mom and I are going. My mom comes from a family of 11 children, eight sisters and two brothers. All of them are going to be there except for two sisters. One lives in Arizona, and that's just a bit much to go for a weekend. And one just isn't really involved with the family anymore. But I'm so excited to see everyone else, and my grandma!! She is 84, and still kicking pretty good! You wouldn't even know she's 84, she looks like she's in her late 60s! That is why I look like I'm 12! I get my young genes from…


I am incredibly angry right now. More like livid. In the PH chat rooms tonight, a person named Sarah came into the chat room. She started out ok, saying she was in the room because she wanted to find out more about PH. She didn't have PH, but a friend did, and she wanted to know what it was really like with PH because she thought her friend was faking it.

I'm sorry, faking it????

How do you fake being so out of breath after walking up a flight of stairs?

How do you fake being a little blue after just walking down your hallway?

How do you fake blowing up with fluid because your heart is starting to go into failure?

How do you fake being tired when you do something simple like making your bed?

How do you fake a disease with tests and doctor visits that cost an incredible amount of money?

How do you fake an illness with treatments that can cost thousands of dollars a month?

I can't begin to tell you how angry I was to hear this woman spew all of the things she thinks her friend is f…

Crazy Days!

I've had such a busy several days! Wednesday I was out all day visiting. First I went to Mandy's house for most of the morning and early afternoon. I played with my cute little niece for awhile, and she just cracks me up! And I got to see my cute little nephew, too, but he was sleeping most of the time. It was nice to just sit and chat with Mandy after both kids were sleeping. I still miss having her upstairs sometimes, but there is definitely no room for them there now. After I got home from visiting them, I got a call from a friend I used to work with at Headstart. She had had surgery, so she is off for 6 weeks, and she wanted to know if I wanted to come visit. So I did! We just sat on her back porch for a few hours, chatting away. I find it funny that I really didn't like her at first when I started working at Headstart, and now she is one of the only people I still talk to after I left there! I'll probably visit her again since she'll have alot of time off work…

A Brand New Living Room



Oh The Possibilities!

I know, it's been awhile since I wrote. I was reminded of this by a good friend! lol

It seems so much has beeg going on, and the summer is just sliding away so fast. This week will be pretty busy come Thursday. I am leaving in the early morning with my dad to go to Cleveland, so I can finally take the first dose of my new medicine, Revatio!! I'm so happy about this, because lately I've been feeling a little more short of breath. And I've gotten back into exercising again, and I know I'm not doing as well as I was before. So I truly hope Revatio works for me, and gives me more energy to get through things! I have heard some of my PHriends say it's worked right away, so that is good to know! Wish me luck!!

My living room rug is being ripped out this weekend by my wonderful friends!! I've slowly been packing things in boxes so it's easier to move the furniture out of there. I just cannot wait for it to be gone!! I really am going to feel like I have a modern…