Monday, December 31, 2012
Saturday, December 29, 2012
Monday, December 10, 2012
Christmas is coming, and I have been buying gifts for a couple of months. I usually start my shopping in the summer, but for the past two summers, nothing has appealed to me. I've cut back a little on spending, and so for a couple friends, I thought I'd try a new craft. I have made so much jewelry for my friends in the last however many years, I'm afraid they might be bored with it! One of my friends took a class on how to paint on glass, and she came over a month go to show me how. As tricky as it can be, I'm loving it! So I thought I'd make a few gifts! The wine glasses are for two friends, and the beer mug is for K. I wanted to do tennis racquets and balls, but the racquets got frustrating. lol Anyway, maybe I'll just keep painting glass as a new hobby? If I really wanted to go crazy, I could glue beads all over them, too!?
Sunday, December 02, 2012
It's rather hard to believe that 12 years ago today, I was given a small puffball of a kitten as a Christmas present. A dozen years later, and he isn't tiny! Mittens is my kid, and I just love him to bits. He has brought me so much joy, as well as aggravation! lol I don't know how many years he'll still be with me, but being that he's an indoor cat, I'm hoping it's many more!
So Happy Anniversary, Mittens! As mommy always tells you, you're the love of her life!
Friday, November 30, 2012
-Anyone can have PH
-Age and gender make no difference
-The symptoms mimic other illnesses, so a person can be misdiagnosed for years
-If not treated as soon as possible, it can lead to right heart failure
Thursday, November 29, 2012
PH is NOT caused by smoking.
There is my simple PH fact of the day!
Wednesday, November 28, 2012
High blood pressure
High blood pressure in the lungs
Life-threatening if not treated
Diagnosed by right heart cath
Tuesday, November 27, 2012
Eisenmenger syndrome progresses over time as a result of a complication of a heart defect and the effects of high bl
Congenital heart defects of this type include:
patent ductus arteriosus (PDA) - a connection between the aorta and the pulmonary artery which allows oxygen-rich (red) blood that should go to the body to recirculate through the lungs.
atrial septal defect (ASD) - an opening in the atrial septum, or dividing wall between the two upper chambers of the heart known as the right and left atria.
ventricular septal defect (VSD) - an opening in the ventricular septum, or dividing wall between the two lower chambers of the heart known as the right and left ventricles.
atrioventricular canal defect (AV canal) - a complex heart problem that involves several abnormalities of structures inside the heart, including an ASD, VSD, and improperly formed mitral and/or tricuspid valves.
Eisenmenger syndrome is a life-threatening condition requiring careful medical monitoring. Medications can improve symptoms and prognosis.
Symptoms of Eisenmenger's include:
cyanosis (pale blue or grayish skin due to decreased oxygen in the blood)
dyspnea on exertion (shortness of breath with activity)
shortness of breath at rest
chest pain or chest tightness
heart palpitations ("skipping beats" or "racing")
dizziness or syncope (fainting)
paresthesias (numbness and/or tingling of fingers and toes)
Complications of Eisenmenger's can be:
blood clots (e.g., deep vein thrombosis in extremities)
Some individuals with Eisenmenger syndrome who have no other health complications may live into middle adulthood, and a few may survive into the fifth or sixth decade of life.
Some considerations related to Eisenmenger syndrome include, but are not limited to, the following:
Pregnancy is not recommended for females of child-bearing age with Eisenmenger syndrome. Pregnancy may pose a high risk of death for the mother as well as complications for the fetus due to effects of low oxygen levels in the blood.
Any anesthesia and surgery is considered high risk and should be carefully planned. Collaboration with a cardiac specialist is recommended.
Air travel and high altitude exposure requires adequate hydration (fluid intake) and supplemental oxygen to prevent complications.
Severe headache, dizziness, syncope (fainting), or changes in level of consciousness should be taken seriously and evaluated on an emergency basis.
Smoking and alcohol intake are not recommended.
Coughing should be controlled or prevented with a strong suppressant medication to prevent risk of pulmonary hemorrhage (bleeding from the lungs).
Flu shots are recommended annually, and pneumococcal vaccine should be received according to the physician’s recommendation.
Eisenmenger syndrome treatment is aimed at controlling the symptoms and managing the condition. Although there's no cure, medications may help you feel better, improve your quality of life and prevent serious complications. Doctors don't recommend surgery to repair the hole in your heart once Eisenmenger syndrome has developed, and any surgery may be life-threatening. It's important that you're treated by a doctor who has expertise in Eisenmenger syndrome.
Monday, November 26, 2012
Sunday, November 25, 2012
37 years ago, still not much was known about the disease.
Today, we have 9 FDA-approved medications to help improve symptoms experienced by the disease.
There is still no cure.
Friday, November 23, 2012
Thursday, November 22, 2012
I happen to be thankful for so many things. My family is my life, my friends are wonderful, and my health is stable at this point in time. I have a roof over my head, clothes to wear, and a very loving "kid" I just adore.
And it may seem odd to say this, but in a way I'm thankful for PH. Obviously I don't love having this illness, nor do I wish it upon anyone. But what I'm thankful for is that it's given me a sense of purpose. It's allowed me to help others. It's given me time. Time to spend with my family and friends since I don't work. It's given me the ability to empathize, to feel a connection and understanding with those dealing with PH or any sort of illness. It's allowed me to appreciate the little things in life. Had I been a healthy person with a busy lifestyle, I might not see all those wonderful small details that God has given us. So yes, I am thankful for PH in these ways, but I will surely be most thankful WHEN one day there IS a cure!
Wednesday, November 21, 2012
But are you wondering what that actually FEELS like? Well, try this experiment. Walk up a flight of stairs. But walk up those stairs breathing through a straw. Not just any straw. Use a straw meant for stirring coffee. While you're at it, plug your nose while going up those stairs, breathing only through that tiny straw. Are you gasping for breath by the time you get up there? Is your heart racing, feeling like it's going to bound out of your chest down the street?
Yeah? Well, now you know what it feels like I try to vacuum one rug. Or when I try to go for an extended walk in colder air. Or when I'm just having a bad PH day.
Tuesday, November 20, 2012
Monday, November 19, 2012
Sunday, November 18, 2012
Saturday, November 17, 2012
Friday, November 16, 2012
-Obesity and obstructive sleep apnea
-Drugs and toxins
You can read more about these risk factors HERE!
Thursday, November 15, 2012
-Low blood pressure
-Irregular heart rhythms
-Loss of hearing
Wednesday, November 14, 2012
Tuesday, November 13, 2012
Another type of IV medication is Remodulin (treprostinil). It also helps to relax the blood vessels to allow for better circulation of the blood in the body. Remodulin is requires a catheter and a pump to administer the med, but it has a longer half-life than Flolan. It also does not require ice packs for usage.
Room temperature epoprostenol was approved in 2010, called Veletri. It does not require ice packs or refrigeration.
Monday, November 12, 2012
*Ventavis (iloprost): When used, Ventavis causes direct vasodilation of the blood vessels in the lungs, meaning the blood vessels relax and open up to allow more blood flow through the vessels. Ventavis treatments are done around 6-9 times a day, depending on how the PH patient responds and feels.
*Tyvaso (treprostinil): Tyvaso works very much like Ventavis, in that it goes directly into the lungs through inhalation, and opens up the blood vessels to allow more blood through the vessels. Tyvaso is done in 4 separate treatments a day, spaced evenly apart.
Sunday, November 11, 2012
*Tracleer (bosentan): Tracleer is an ERA, which stands for endothelin receptor antagonist. Endothelin causes the blood vessels to narrow. Tracleer blocks endothelin, which is produced in overabundance in PAH patients. This helps to reduce blood pressure in the lungs, and to improve activity level. Tracleer is taken twice a day, 12 hours apart. Tracleer requires monthly bloodwork to check for liver failure.
*Letairis (ambrisentan): Letairis is also an ERA, and also works very much in the same way as Tracleer does. It is taken once a day. Letairis does not require bloodwork, although some doctors may still want labs checked occasionally.
*Revatio (sildenafil): Revatio is a PDE5 inhibitor. This means that Revatio relaxes the blood vessels of the lungs to increase blood flow, making it easier for the heart to pump. Revatio is taken three times daily. Revatio is commonly know as Viagra!
*Adcirca (tadalafil): Adcirca is also a PDE5 inhibitor. It is also know as Cialis. The biggest difference from Revatio is that Revatio is taken three times daily, and Adcirca is only taken once a day.
Saturday, November 10, 2012
Calcium Channel Blockers (CCBs) - These are oral meds which relax the muscles around blood vessels which allows better blood flow. CCBs can also help to regulate heart rates. CCBs are only effective in less than 10% of PH patients.
Digoxin - Digoxin can help the heart pump. It can also help regulate the electrical activity in the heart. It is an oral med taken once a day. I've been on this medication for over 35 years!!
Warfarin (Coumadin) - Warfarin is a blood thinner taken once a day. It must be carefully regulated, so bloodwork is required often. Warfarin can be affected by foods and other medications, so a person taking it must make sure they monitor what they eat and the other things they ingest closely. I was on Coumadin for at least 10 years, and finally stopped it last year to try a baby aspirin instead. I can tell you that I don't miss Coumadin at all!!! lol
Diuretics - These meds help treat heart failure and fluid retention. They are oral pills taken once or twice a day to help reduce the amount of fluid in the legs and/or abdomen.
Oxygen - Yes, oxygen is a medication! Low oxygen can cause the pulmonary vessels to constrict and may worsen PAH. Oxygen levels should be maintained at 90% or above in PAH patients, and can be done be using supplemental oxygen. UNLESS YOU'RE LIKE ME!! My congenital heart defect doesn't really allow me to be anywhere near 90%, even when I'm on a high liter flow of oxygen. My body has become accustomed to the low numbers, but I usually wear the oxygen anyway just because I know it's at least keeping my heart from working too hard!
Friday, November 09, 2012
The approved therapies for treating PAH symptoms are:
*Inhaled Treatment Options
Thursday, November 08, 2012
Idiopathic PAH: The cause of PAH cannot be found.
Heritable PAH: Formerly known as familial or genetic PAH, this type can be inherited, and is relatively uncommon.
Associated PAH: PAH is associated with another disease or condition, such as connective tissue disease, congenital heart disease, chronic liver disease, HIV, drugs and toxins, and more.
CTEPH (chronic thromboembolic PH): PAH is a result of blood clots in the lungs. CTEPH is the only type of PAH that can POSSIBLY be cured by a surgery called pulmonary thromboendarterectomy (PTE), which removes the blood clots from the lungs.
My PAH is a result of congenital heart disease, so I am in the Associated PAH category. I was diagnosed with atrioventricular canal, which is a fancy way of saying I have 2 holes in my heart. Yippee!! The holes have never been repaired, so I've been living with both for 37 years (so far!).
Wednesday, November 07, 2012
Tuesday, November 06, 2012
Blood tests - An arterial blood gas (abg) is totally not a fun test at all. It's a blood draw, but the blood is taken from the artery, not the vein. It hurts!! But what it tests is the amount of oxygen in the blood. If there isn't enough, the patient may need to be put on supplemental oxygen. Other blood tests check for liver and kidney function, thyroid problems, collagen vascular disease, and any signs of infections or HIV.
Chest Xrays - The chest xray can determine if the right ventricle or pulmonary arteries are enlarged. It also can show if someone has scarring or emphysema.
Electrocardiogram - This test checks the electrical impulses of the heart.
Pulmonary Function Tests - PFTs measure how much air your lungs can hold. They also show how much air is moving in and out of the lungs, and the lungs' ability to exchange oxygen.
Exercise Tolerance Test - Also known as the 6 minute walk, this test is supposed to determine how well a patient can handle exercise. This is the one test that gets repeated with almost every visit to the PH specialist. This test is also one that I find many of my phriends can't stand, including myself. lol
Nuclear Scan - A V/Q scan checks for blood clots in the lungs.
Monday, November 05, 2012
My own personal experience involves my pediatric cardiologist. Since my PH is due to congenital heart disease, I followed a pediatric cardio for most of my life, up to my early 20s. Dr. G. was wonderful, and I really loved him! But when my symptoms started worsening in my early 20s, he gave me inhalers to try. I look back at this today and realize that he really may not have fully been aware of the symptoms of PH. I didn't even know anything about PH at that time, only that I had it. I didn't have any clues as to what it really meant when the inhalers didn't work, my symptoms continued to worsen, and I was referred by my general practitioner to the Cleveland Clinic for a lung transplant evaluation. I went several times before I was put on my first PH med, and received a flyer in the shipment of that med for the PH Association. That's when I began building my knowledge of everything pulmonary hypertension, and why I now insist that a person see a PH specialist so they get on the right path to treatment!!
Sunday, November 04, 2012
Saturday, November 03, 2012
Friday, November 02, 2012
Swelling of the arms, legs, ankles, or abdomen (edema).
These are symptoms of so many conditions. Doctors usually consider asthma, COPD, and being overweight right off the bat when a patient complains of these symptoms.
Sometimes it's PH!! Doctors really need to start including PH as part of the list of conditions to consider when a patient is having these symptoms! To find out more about this new awareness campaign that the PHA started this year, especially geared toward medical professionals, please go HERE!!
Thursday, November 01, 2012
Tuesday, October 30, 2012
Last night, I was frustrated with my indoor antenna because the reception wasn't too great. I kept moving everything around, and then googled some tips on how to make reception better. Of course, many articles were saying an outdoor antenna was a better option. So, as I sat there trying to watch The Voice, I had a "lightbulb moment." In my living room, there are two cables located on two different walls. The one cable I had used when I had actual cable, and then changed to the Dish. The other cable has just been sitting there. It occurred to me that I must have an antenna on the roof!!
Umm, HELLO?????? I've only lived here, what, almost 14 YEARS???? LOL
Sooooo, after The Voice was over, I shut everything off. I unhooked the indoor antenna, and hooked up the mystery cable. I turned the tv back on, and let it scan for channels. VOILA! I had 21!! I truly did have an antenna on the roof!!
I will be returning the indoor antenna as soon as I can, and just tell them
And in final news, PH Awareness month is two days away!! November 1st, I will start using Facebook and my blog as an awareness tool to promote awareness of this crappy disease! I hope to also write regular posts in between, so sometimes I might have a couple posts in one day. I will also be putting my display board up at two hospitals, so I guess I actually need to MAKE it!! I have much of the supplies I want to use, so it shouldn't be too hard! I'll be posting pictures of it as soon as I'm done! I'm excited to be spreading the word about PH in so many different ways!!
Wednesday, October 24, 2012
This post is to mainly see if the Blogger app can actually post more than one picture, which I see can! Thank you to the person who suggested using it!!
This post also is to show off the lovely artwork created by myself and my niece and nephew on Saturday night when I babysat! They are 7 and 5 years old respectively, and pretty artistic! I was told by both of them that my picture would warrant me having my own art studio. Gotta love kids and their wild imaginations! LOL
Can you guess which one is mine?? :)
Several years ago, I used some points from a survey site I joined to get my first ever crock pot. It was a large crock pot, and my first meal from it was lasagna. I didn't know you could make lasagna in the crock pot!! Anyway, I used it several more times, but the size of it kept me from using it more often. I mean, I'm only one person trying to eat a ton of leftovers, and not everything freezes well!
So a couple years ago, Mandy's crock pot bit the bullet. Since it was near my birthday, I offered to give her mine if she'd buy me a 4qt crock pot. She agreed! The smaller size has been perfect for me!
This is the time of year when I love using the crock pot the most. Soups are the best, but so are stews. And although I usually despise dealing with bones and skin on a chicken (which is why I only buy boneless skinless chicken breasts), a whole chicken in there comes out SO GOOD!! See how cute it looks in there?? It literally falls apart when done, so it's pretty easy to deal with.And then I can make homemade chicken broth!
So, if anyone out there is considering a crock pot, I'd highly recommend it!! There are tons of recipes out there. It's simple to just throw ingredients together and get a delicious dinner by the evening!
Saturday, October 20, 2012
When I moved into my apartment back in 1999 (whoa, still can't believe it's been that long ago!), I signed up with the local cable company for tv service. There really wasn't many other options at that time. Years later, I decided to try one of the satellite dish companies. I know some people think satellite is not as reliable, and you lose the signal with a drop of rain. But honestly, in all the time I had it, I think I lost the signal a handful of times. So I thought it was fine for me!
Last month, I decided to join this century and upgrade my big old hunk of tv to a flat screen. I really like it, but I wasn't getting the full effect since I wasn't paying for HD programming. I wasn't even sure if I wanted to. But I was also thinking long and hard about ditching satellite altogether and using an antenna to get the local stations, which is what I watch the most anyway!
That is precisely what I did today. I bought an antenna at Target, paying a little more than I wanted to, but oh well! I set it up after dinner, and scanned for channels. I got 8 at first, but when I saw that it hadn't picked up NBC, I tried again. I can't live without NBC! The 2nd time I got 10 channels, including 2 NBCs. Ok, better than none!!! So the next step? Cancelling my satellite service!
I admit to being nervous about this step. Why? It wasn't about the argument I was expecting from the representative on the other end. It was more of letting go of paid programming that I've been used to all my life!! lol But really, why keep paying for channels I watch all the time that I can get for free by antenna?? Makes no sense to me, or my wallet!
So I made the call, and got all ready to defend my choice. But I didn't have to really. The lady I spoke with was almost like fine, whatever! Within 10 minutes, I was satellite free! One bill down the drain! And within the next couple months or so, I hope to be able to save enough for an internet streaming box for another way to watch tv and movies. All I have to do is pay for the box and I'm good to go! And if I can figure out how to hook my laptop to the tv, maybe I can watch things that way, too!
Tuesday, October 16, 2012
1. Going to pulmonary rehab, after picking up my mom since she also had an appointment at the same time at the hospital.
2. Dropping my mom back off at her house about an hour later.
3. Rushing through a very quick lunch and a 2 minute clothing change at my house all within 15 minutes.
4. Driving 45 minutes to get to an ear doctor appointment, stopping for a tall decaf caramel macchiato at Starbucks on the way (yum yum!!).
5. Waiting 35 minutes in the tiny little room to see the doctor when I WAS ON TIME TO SEE HIM. Grrr, that always irritates me!
6. Going to A.C. Moore to
7. Browsing Old Navy in search of something to use my $25 gift card on, and walking out with nothing.
8. Driving back to Niagara Falls to run some more errands, including dropping off a package at UPS, and loading up on canned food for Mittens (I'm trying to get him off dry food, it's going to take a loooooooong time).
9. Walking around Walmart
10. Popping into Big Lots in hopes of finding a TV antenna, and instead walking out of there with boxes of Christmas ornaments for my new tree!!
11. Getting home way past my dinner time (and Mittens'), unpacking everything, making a quick dinner and crashing on the couch for the rest of the night!!
While I'm mostly glad that I am able to go out and about by myself for very long periods of time like I was today, the tiredness from it can sometimes get to me. I am exhausted, but not as much as I thought I'd be. Hmmm, that doesn't make sense, does it?? I guess maybe I am too tired to think and make reasonable sentences!! Well anyway, the thought of a nice, comfy warm bed waiting for me to snuggle into is very appealing!!! So that is where I'm headed right about now!!
Friday, October 12, 2012
You can see the announcement by going HERE!!
And I encourage you to be a follower of her blog, because she always has wonderful posts, and really beautiful pictures of the area where she lives!!
Thank you, Sunshine!! I'll definitely take a picture of my lovely new owl whenever she gets here! Yes, I have decided the owl is a she!! hehe!
Wednesday, October 10, 2012
Monday, October 08, 2012
Saturday, October 06, 2012
A week ago, I walked out of Walmart with a brand new cellphone. I had been able to upgrade my phone, and knew which one I wanted, but I had been pricing the phone at various stores and websites before settling with the brick-and-mortar Walmart. The Samsung Galaxy SIII is now mine, and I'm still trying to get used to it! It's been a little different than my Droid Incredible. Some things are easier (like turning off the mobile data with one touch), and some things are driving me nuts (the keyboard is annoying!!). But really, I have been enjoying the upgrade!
My favorite part of the phone is the camera. I can take a picture of something in front of me, and then take a picture of myself by touching a button. The camera lens turns around inside to face me instead of me having to turn the phone around. How cool is that??? I take waaaay too many profile pics of myself for Facebook, and delete so many of them before I settle on one I like, because I can't see what I look like while trying to take the picture. Now I can with the backward lens! Whoo hoo!
With the new phone, I decided to see what Instagram was all about, since it's the latest craze. It's pretty neat! I've mostly taken pictures of Mittens so far. Easy subject! Here's one I love!
I'm typing this post on my phone, so I'm not exactly sure where the picture will show up when I post it. I also can't add more than one picture! Does anyone use an app for blogging that's better than Blogaway?? Anyway, hopefully I can learn to do even more with this phone. It's really neat to think how much a phone can become more than just an object to talk on! :-)
Friday, October 05, 2012
Sunday, September 30, 2012
I got my flu shot yesterday morning, and while I don't think it contributed to my PH symptoms, the owie in my left arm didn't help any. Even now it hurts if I rub the area where I was stabbed! Ok, I wasn't really stabbed with the needle. The nurse was rather nice. So I'm vaccinated for another year. I'm hoping this winter will be kind to me like last winter. I didn't get sick, knock on wood!! It's a relief not to be sick. Having PH plus a cold just means I'll take at least twice as long getting better since I'm limited on what cold meds I'm allowed to be on. Decongestants are a huge no-no, even though I didn't know that when I was a kid and I took it for at least 20 years!! Here's to another germ-free winter!!
I am off to bed early tonight, since I don't really think I slept too well at K.'s last night. I was having a little bit of a hard time breathing since I only had one pillow, and I usually sleep on two here, or wherever I go. Plus when I finally drifted off to sleep, I woke abruptly who knows how long later to K. telling me I kicked him, and completely not remembering doing so. lol I asked him about it this morning and he didn't even remember talking to me! So who knows what happened last night, but I need to get to bed so I can make up for the interrupted sleep last night! lol
Tuesday, September 25, 2012
1990: Biz Markie - Just A Friend
I can't tell you how much I STILL love this song!! I have it on my Sony mp3 player, and when it comes on, I just sing along!!
1991: Mark Mark And The Funky Bunch - Good Vibrations
This song brings me back to my high school days!
1992: Charles & Eddie - Would I Lie To You
I'll be honest, I forgot that I used to love this song!! Had I not seen it on the list I found on the internet, I would still not realize who the heck sang this song. Quite obviously, they didn't last too long!!
1993: The Proclaimers - I'm Gonna Be (500 Miles)
I still seriously can't stand this song. It was sooo overplayed when it was out, that I can't listen to more than a minute of it after all these years!!
1994: US3 - Cantaloop (Flip Fantasia)
This song reminds me of going to a dinner with my boyfriend at the time, and trying to get him to dance. It didn't work. lol
1995: The Rembrandts - I'll Be There For You
This song, of course, became huge because of the extremely popular tv show, Friends. Friends was one of my favorites, and I still watch the repeats whenever I see them on!
1996: Primitive Radio Gods - Standing Outside A Broken Phonebooth With Money In My Hand
I still absolutely love this song, but it has to be one of the most ridiculously long song titles ever!! lol
1997: Aqua - Barbie Girl
I'm really not sure how this song became a hit. I admit I liked it the first few times I heard it, but then I grew tired of it!
1998: K-Ci & JoJo - All My Life
I seriously think anyone who got married in 1998 used this for their first dance. It was soooo popular!!
1999: Len - Steal My Sunshine
The biggest hit I can remember from 1999 is this one! It did get annoying after awhile, but I have to admit, at least it was a happy little ditty!!
Well, these are the songs that were one-hit wonders in the 90s. I tried to be a bit diverse, instead of picking out all the dance songs! This was a rather fun post to do. I'll have to do more like it!!
Sunday, September 23, 2012
Wednesday, September 19, 2012
This past Monday (the 17th), I turned 37. This is such a blessing for me. I wasn't given much hope about my future when I was diagnosed at 9 months old with PH and congenital heart disease. The guess from the doctors was that I'd live anywhere from a couple years to maybe 50. I'll be quite honest, I think if any of the doctors who had seen me as a baby saw me today, they would be very shocked to know I'm doing pretty well at the moment! I know I still have bad days or periods of time when I struggle with my health, but overall, it's nothing compared to when I was growing up trying to survive on no medications. So, I am incredibly thankful for every year I get. People look at me oddly when I say "Bring on 40!! Heck, I can't wait til I'm 50!" It just means that I can be here for another year with the people who mean so much to me in my life...even if it does eventually mean that one day I'll be walking around with a cane and hearing aids with lovely white hair!!
Tuesday, September 11, 2012
Wednesday, August 15, 2012
Friday, August 10, 2012
I drove downtown and found a parking spot that was a bit of a walk from where we needed to go. I just didn't want to pay for the parking lots that surrounded so much of the area down there, and besides, I needed to walk! We got near the Observation Tower, which is where you have to go to take the long elevator down to the dock for the boat. Here are some views from the top of the Tower!