Wednesday, May 30, 2012

Fatigue

I had a nice Memorial Day weekend, with great weather to enjoy and company. I spent Saturday evening with K. on the waterfront in Lewiston, and then we went to the tennis courts on Sunday morning for awhile. Now I can't go crazy trying to play tennis, but K. has been teaching me how to hit the balls and hold the raquet, and I have to say, I was doing pretty good! I kept focusing on the ball every time he whacked it back toward me, so I would end up hitting it right back, and we'd go for quite a bit until I messed up. lol I had fun! He left Sunday afternoon, and I had a lazy rest of the day. Monday I made crock pot boneless ribs and had my dad over for dinner. They turned out fabulous, and my dad raved about them to everyone. Yay! lol

I slept so horrible on Monday night that I was beyond tired most of Tuesday. I didn't even go to rehab, I slept in. However, after only being up a couple hours, I had to go take a nap again. Then I'd read, which would lull me to another nap. That was pretty much my entire day. Nap, read, nap. I even turned off my laptop and went to bed earlier than normal. I was hoping for a much better night's sleep!

Today I thought I was doing much better, until I realized I needed to lay down before going out for groceries. What in the world?? I haven't had fatigue like this in such a long time. It's almost depressing. I hate it when I'm so tired that I just can't get anything done, or I don't feel like doing so. But, I did take that short nap, and a bit after that my mom was ready to go for groceries. Thankfully I had energy for that! By the time I got home, unpacked everything and put most of the stuff away, I was ready for another nap. UGH! I took another brief one, this time with Mittens (awww), and then made dinner. I felt like sleeping again after that, but I didn't!! So now it's 11pm and I'm so ready for bed! Maybe tomorrow I'll be able to get to rehab and the exercise will help perk me up!!

Tuesday, May 22, 2012

Nostalgia

When I was growing up, one of my favorite things to do with my sisters and friends in the neighborhood was to walk to our local Wilson Farms convenience stores for candy. Granted, this walk usually tired me out, but it was only about 2 1/2 blocks away, and we usually took our time getting there, and going back. We almost always took the same route, so we were pretty familiar with houses on the way, and the animals we'd meet, and the people we might see. We even nicknamed Wilson Farms "WIF," so when one of us felt like going there, we'd just say, "Does anyone want to walk to WIF?" We bought so much candy there, and even ice creams and other snacks, and I love the memories of just going there often. 

I've noticed in the last few months that "WIF" has been changing over to 7-11 covenience stores, and it makes me a little sad. There will no longer be a Wilson Farms that I grew up with, and even continue to go there once in awhile nowadays. 7-11 stores still sell many of the same sort of items, but it's just....different. I guess I'll always just have to hold on to the memories I have about the journeys we took to WIF, and hope that 7-11 will bring memories to another group of kids in the future!
The nostalgia of something old from my past got me thinking about how every generation has something that they used to love, and that is now just a memory. My parents grew up with 45's, and my generation saw cassette tapes and then CDs. My parents were thrilled when black and white televisions were available with a few channels. My generation had color tvs with tons more stations to watch. Radios evolved from simple players to huge boomboxes to Walkmans, then CD players, and now mostly digital. It's just amazing how things have changed so much in such a relatively short time!

I was trying to think of what has changed the MOST (in my opinion) in the last couple decades, and I would have to say it's been the telephone. When I was growing up, this is the phone we had in the kitchen:
It was never really fun to be tethered to the kitchen when trying to have a conversation in private, when everyone else was around! lol Eventually my sister, Lisa, and I bought a cordless phone to have in the computer room, and wow, that was a  nice change!!
This picture shows an upgraded version of a cordless phone, which I decided to use since I couldn't find the chunkier phone we bought. We were able to go anywhere in the house with that phone, and didn't have to worry about trying to share secrets while someone else was around!

When I moved out of my parents' house, I had my grandfather's old corded telephone that I kept in the computer room, and also a cordless phone that I bought. I don't really remember why I had both types. lol But from 1999-2003, that's what I used on a constant basis!

Cellphones started coming out, I don't remember what year, but I never had the first version of one, which sorta looked like this: 
I can't even imagine what it was like trying to use that whopping phone!! And how did anyone carry that thing around?? When cellphones started getting "smaller," I had started going back to school for my Masters' degree, and I bought a prepaid cellphone, which kinda looked like this (and which I still actually have!!):
It wasn't as big as the previous picture, but it still was a chunky phone! I carried it around in my backpack, and I did use it mostly when I was away from home. It served it's purpose, which was something to have with me just in case of an emergency!

In 2003, I was highly interested in having a cellphone for the purpose of getting rid of my home phone. So, I got my first non-prepaid phone from Verizon! It pretty much looked like this:
It was pretty basic, and allowed me to stay connected no matter where I was! And even since then, cellphones have progressively gotten better and more technical and useful (or detrimental??) to so many people. The basic cellphone developed into a smartphone, Apple being one of the first (if not the first) to introduce a phone that could basically be your computer as well.
I did not dive into the smartphone world until January 2011, when I upgraded my latest phone (which had been one with a qwerty keyboard, like a little typewriting right on your phone!), and I seriously can't imagine going back!! I did not buy an iPhone, because I'm not an Apple fan, but I got a Droid. I can't believe what it can do besides call people!! I can email, send texts, use apps of all sorts, play games by myself or games with people, surf the internet, watch Youtube videos, and so much more. I have no need for a laptop if I really wanted to go without one, but I'd have to say that getting rid of my laptop would not allow me for creative blog posting such as this. lol Anyway, my Droid is with me wherever I go, even in the house. Well, except for my bathroom, because sadly I had a bad water event with one of my cellphones a few years ago (it was the victim of a toilet drowning, even though after a month of drying out, it was ok!!). 

So there it is, my observation of the fastest changing object in the history of the world (in my opinion), the telephone! And I didn't even start at the very beginning, either!! All because I was feeling a little nostalgic with my trips to WIF way back in the day. :)

Time Flies

Gee whiz, the whole month of May has almost gone by since the last time I posted. My bad!!

Well, as far as I know, the oxygen reservations have been made, both for Orlando, and for Cleveland when I go for my appointments the week before I go to Florida. For some reason I still don't totally trust the guy who set everything up, but I have the phone numbers of the places that will provide oxygen for me out of town, so at least I can call them to make sure things are set!! The last thing I need to do is bring a form to my local doctor for her to fill out about using oxygen on the plane. I need to have something with me when I go to the airport. Then I think I'm set!

I've already started to gather things to pack for my trip, and I'm also trying to figure out what clothing to bring. While it's going to be pretty stinkin' hot in FL for June (like probably 90s with high humidity!), the hotel where the conference is located will most likely be cold. And I mean like artic frigid freezing cold. I've even had phriends say that some of the past hotels used for conference have been downright too cold, so I can't imagine that this hotel will be any different. So, as ridiculous as it may seem, I'll be bringing long sleeved shirts and sweaters!! Oh yes, I'll still bring shorts and tshirts, but since I'll  mostly be inside for the sessions and such, I'll have to just make sure that I am warm! I'm a little worried that I might get sick, because I tend to start a cold when I'm in air conditioning for long periods of time. So hopefully wearing winter attire in the hotel will prevent that, no matter how dumb I feel doing so!! lol

I'm getting so excited about going, especially because I'll get to meet so many phriends!! It's going to be a lot of firsts for me, including flying, and being on my own without my parents. But I'm looking forward to it! I'm crossing my fingers that everything will work out just fine with traveling and having fun!

My bathroom is almost completely done. All the work was done almost 2 1/2 weeks ago, and this past Friday and Saturday is when my mom and I finally primed and painted the new ceiling and the walls. It's nothing fancy, just white, but still, it seems like I have a new bathroom since there's a fresh coat of paint! My new toilet is great, the ceiling light/fan works well, and the new sconces on each side of the medicine cabinet are really nice. Yesterday, I did some touch-ups with the paint, and then I totally cleaned everything! I scrubbed the tub, washed the sink, and I even took my time and scrubbed the floor. Now that is something I  have had a hard time doing the past few times I've tried, but yesterday I seemed to do ok! I hung up the decorative fixtures I had taken down, and now I'm just waiting for one thing: new shower curtain brackets, which are supposed to come in today. As soon as those are up, and the new pipe my dad cut for the rod is in place, I'll finally have my entire bathroom back!!! I'm really happy about that, since I'm tired of showering down in the basement!!! lol

Friday, May 04, 2012

Progress

Well, after being totally irate with the o2 guy at the office yesterday when I listened to a message he had left me, I called him back. He just kept insisting that the one portable oxygen concentrator (POC) I wanted to use for my flight did NOT go up to 5lpm. I tried as nicely as I could to tell him that it indeed went up to 5lpm, and in fact, it actually went up to 6. I also told him I had seen one just a few weeks ago at my support group meeting, and I saw that it goes up to 6. AND, that the website says it pulses up to....6! Soooo, he said he had to go check. He got back on the phone, and I could hear him flipping through a manual. After a few minutes, he says, "Oh, oh I see, it looks like it does go up to 6lpm." I wanted soooooo badly to yell, "I TOLD YOU SO!!!!" However, I just nicely said, "You learn something new everyday, huh?" So, I pretty much have the oxygen for the plane set, although I did have to call back today and ask for 2 extra batteries since using the POC at 5lpm isn't going to last long on the 2 batteries that originally come with the POC. I guess the extra ones are rented, but oh well. I can't be stuck on a plane without anything!

Now I'm waiting to hear if I can use liquid o2 in the hotels, which would be totally awesome!! I'm allowed to bring Artie on the plane (my little Helios that I use for going out and about), as long as it's empty. And then I can fill Artie and do stuff, and go back to my hotel room and fill again whenever. It would also free up a plug in the hotel room for my phriend's POC or whatever she arrages for o2 use. I'm going to call the guy at my o2 company next week to see if he found out if I can use the liquid. I feel like I need to keep bugging him because he just doesn't seem to be the type who gives a crap about his job!!

Progress is also being made on my bathroom ceiling. Well, as far as I know right now, I HAVE no ceiling in there. lol It was ripped down this morning, and the guys have put the vent in. What they are doing now, I'm not really sure! Lots of power tools are being used, so hopefully something good is going on!!

Wednesday, May 02, 2012

Unplugged

It may not seem like a big deal, but I spent about two and a half days not being able to use my laptop. It was the longest two and a half days ever!! LOL Late Sunday night, I heard an odd sizzling noise, and realized my laptop charger was crapping out. Greaaaaat. So I hurried onto Ebay and looked for a replacement before the laptop battery ran out. And then, well, the battery ran out! I was able to at least check email and Facebook during the day for the past couple days, but that was about it. I tried turning on my dinoputer Monday. It is just so terribly slow. I updated the virus software and was able to do check a few websites, but it just became so frustrating that I shut it down on Monday night and didn't bother turning it back on. I'm not even sure why I still keep it, but I guess I'm glad I have it for that "just in case" event!

My mom hired someone to renovate my bathroom and the one in the apartment upstairs. The guy started this morning. He's doing each of the bathrooms in steps, instead of one at a time. Tomorrow he will rip out my ceiling to put up a new one, because I've had a hole for awhile. It'll be nice to have a new ceiling! Both bathrooms are getting new toilets, whoohoo! I'm also going to have some new lights, and a fan. It's exciting!!

I'm still trying to get oxygen arranged for my June trips. My PH doc answered my high priority email about pulse vs. continuous on Monday, saying that pulse is fine to use on the plane. Yay! So, I asked him if he could fax something to my o2 company. I gave it a day, since I didn't have time to call the company yesterday to finish the arrangements. I tried this afternoon. My company still hadn't received a fax. Argh! So, I emailed my PH doc again. His secretary called me a few hours later and told me she had a new script and where should she send it. I gave her the fax number to my o2 company, and thought I'd give her some time to fax it. But when I called the o2 company, they had nothing. UGH!! I called the secretary back, and she hadn't faxed it yet. What the heck?? She said she was going to do it before 5pm. I had called at about 4:30. So I just figured I'd call the o2 company in the morning. Again!! The stupid fax better be there or I'm going to get really irritated! I already have a feeling that trying to figure out the rest of the o2 stuff is going to get me frustrated anyway. Soo, I guess I try again tomorrow!