Saturday, June 30, 2007


I haven't posted in about a week and a half, and I really should have been! There has been so much to write about. I've been so busy, that by the time I got to blogging, I just was too tired to do it. Sooo anyway, here are some happenings!

I became an aunt again last Friday, June 22. Little Sean was born in the afternoon, all 8lbs of him. He's sooooo cute, and looked alot like my BIL when I first saw him. But, I can definitely see my sistore, too! Children surely change as they grow up, so I'll see both Mandy and Ron as Sean changes. Just like I do when I see Hailey. They've all been home since last Sunday, Ron having a week off for paternity leave. I've only been over once since they brought Sean home, since they are trying to get the little guy adjusted to his new life. Hailey is also trying to get used to the newness of a baby around, and being that she just turned 2 the day before her brother arrived, it's a very trying time for them all! But they will get through it. And I will gladly have some playdates with my little niece to occupy her whenever Mandy needs a moment of sanity!

My sistore, Lisa, came home last Friday for 5 days. She drove up because her best friend was having her bridal shower last Sunday. It was lucky that Sean decided to come into the world last Friday, so Lisa was able to see him for a few days! We weren't sure when the little guy was going to decide to arrive, considering he was already 4 days late. Anyway, it was nice seeing Lisa. I wish it could have been a bit longer, but she had to go back home (in NC) to go back to work. She is a counselor, and her district started year-round school this summer. She's not sure she's going to like it, since she pretty much will never get a break. But I guess she's giving it at least a year, and if she doesn't like it, she'll try getting a job somewhere else. We'll see her again in October, when she flies back home for her friend's wedding (which we are all invited to!). That should be fun!

The weather here was very hot and a bit humid for some days, my cup of tea! I actually felt pretty good those days. Then it got cooler. And now I'm miserable. I guess this year I have allergies? Last year I didn't. This year my sinuses are revolting on me. I'm sneezy, and stuffy, and I'm getting headaches, and all I want it to do is warm up again. lol I suppose I could call my PCP to ask about what I can take for it. Generic Claritin is out, because I tried that a couple years ago, and it made me more SOB than I care for. Maybe there is something out there I can try! We'll see.

No word on Revatio yet. My dad tried calling the number he had for Cleveland Clinic to see about making an appt to see a specialist for his ear, but he has to call back on Monday. Hopefully he will be able to get an appt, if they feel they can do something for him. And if he does get an appt, I'll call my PH doc's nurse to let her know I'll be coming on that day to take my first dose of Revatio. And if my dad doesn't get an appt, or they know they can't do anything more for him, then I guess I'll still wait to go back. Or maybe we can just make a day trip, and figure out something else fun to do in Cleveland besides just going there for one thing. I've already been to the Rock 'N Roll Hall of Fame. No need to see that again. The zoo? Hmmmm, maybe. I don't know, I'll wait to see what happens with my dad first!

I guess that's it for now. I'm sure I'm forgetting to write about something else. Oh well, I can always come back later! Right now, I need a nap!

Wednesday, June 20, 2007

Aggravation On A Wednesday!

I swear, I truly wish I had a rewind button so I can start this week all over again. Better yet, I think I'd rather have a fast forward button so this week would be over!!

Today started out alright. Got up, had breakfast, checked stuff online, exercised (a mile, I might add!), got dressed, hid from what I can only assume were Jehovah's witnesses coming around the neighborhood. I was also waiting to hear from my sister or my mom about the baby, since Mandy had to go to the hospital for an ultrasound. The baby is fine, just late, and doesn't seem to want out any time soon!

Anyway, I decided to relax for a bit before making dinner. I kept getting phone calls. Two were the ones that have me aggravated. One was from my PCP's nurse. My doctor doesn't want me to come into her office to take Revatio, I need to go to Cleveland. Fine, this is just great. I guess I can understand her not wanting to have me in the office, but what a friggin' inconvenience. So I call my PH specialist's nurse to tell her this news, and to say that I will just call her when I'm able to come. Who knows when that'll be. She said ok, just let her know when I get it. I said, oh but I have it already, it came yesterday. It's just going to sit there on my counter until I can find time to get to Cleveland. She said ok. Ugh.

I'm just glad I'm not in dire need of this medicine right away. I'm actually feeling sort of better now that the weather has been warmer. But I know there is a big difference in my exercising as compared to a couple years ago, so that's why I asked about being on Revatio.

Well anyway, I'm going to eat dinner now. Steak and mushrooms, and green beans. At least that might make me a bit less aggravated!! Mmmmmmm.

Aggravation On A Tuesday!

Well this day is almost over, thank goodness! It wasn't terribly horrible, I just was aggravated once again for different reasons. Since I'm pretty beat, I'm just going to give a short recap on what happened:

My internet was out almost all day. After thinking it was my computer, calling Time Warner to fix it, then being told someone was going to have to come out to my house on Thursday, my sister told me hers didn't work, either, when she got home from work. Aha, another Time Warner issue, and sure enough, when I called back, they said internet service was down in my area. Figures! I didn't get it back until 8:30. Geesh!

I called my PCP's office again, since I figured she didn't get my message from yesterday. I talked to her nurse. I explained to her my situation regarding Revatio and needing to take it in the presence of doctors. She said she'll talk to my doctor about it tomorrow, when she'll be in the office. I'm praying my PCP will just agree!! If not, I'm going to be miffed.

I didn't get mail today, so the mail I had to send out didn't get picked up. Yes, that is aggravating to me. So I had to go out to the post office just to mail the letters. I truly miss the mailbox that used to be right across the street from my house. Gosh darn it, why did they have to remove it??

It monsooned outside around 4:30 this afternoon. I'm not even kidding when I say I had a hard time seeing right outside my house. That's just how bad it was coming down! Not to mention that every single window in my place was wide open. By the time I got to my bedroom after shutting all the other windows, the floor, walls and furniture near both windows were soaked. Dripping wet, it was that bad! After the storm, I reopened most of the windows. It looked like a war zone outside, with lots of downed tree limbs everywhere. I'm just glad the power didn't go out!

Ok, so this wasn't a brief recap. What did I actually get done today??

I backed up my computer files, since I haven't done it since I bought my computer 2 years ago. I made some pretty jewelry. I made a few phone calls to plan my next PH support group meeting. So I guess I was pretty productive. Despite my aggravation. Yay!

Let's hope tomorrow is aggravation-free!

Monday, June 18, 2007

Aggravation On A Monday!!

I woke up this morning all excited about calling the office of the PH specialist here in Buffalo. I am getting my Revatio tomorrow from Accredo, so I needed to call to see when I might be able to come in an take the first dose. I stated before that my PH specialist at the Cleveland Clinic likes to have patients starting Revatio to come in to take the first dose. They monitor blood pressure, and check other stats for a couple hours after taking it, to make sure the patient is ok on it. Being that the Clinic is a bit over a 3 hour drive from my house, going back there to take one pill is a bit inconvenient. So, I had asked about taking it at the office of the specialist here, and my doctor said that would be fine.

So, I called this morning, and the nurse manager for patients on Revatio told me that I would have to start the pill with my own doctor, since he is the one who is going to be monitoring me. She didn't even seem to care that I have to drive 3 hours for one pill. She did seem surprised that I have to even go into an office to take the first dose, and honestly, it surprises me, too. I'm all for my doctor and Cleveland playing it safe and monitoring someone new on this medicine, but when I have to drive all that way to do it, it's rather aggravating to say the least!

Anyway, I put a call into my PH specialist's nurse, and hopefully she'll get back to me today about it. I just don't have time to drive to Cleveland any time soon. So although I'll be getting Revatio tomorrow, it looks like I still won't be taking it any time soon. UGH!!!!!

Saturday, June 16, 2007

More Good News!!

I found out last night that a new drug that has been in study trials for a few years is now FDA-approved for PAH!! It is called Letairis (ambrisentan). It works very much like Tracleer (bosentan, which I'm on), except the risk of liver failure is much less with Letairis. This is just wonderful news!!! It means there is yet another treatment option available for people with PAH. There are a couple others still in studies right now, but hopefully soon they will be available. This is just very good news for PH patients! Every new treatment put out there makes me believe more and more that one day, they will have a cure!!

Friday, June 15, 2007


Good news!! My Revatio will be here by Tuesday!!

The only problem is that I was just called now, which means I have to wait until Monday to call the PH specialist's office in Buffalo to set up an appointment to take the first dose. UGH. And who knows how long of a wait I might have for that?? Hopefully not that long!

I'm just happy that the new medicine will be here, and very hopeful that it will help me out alot! Keep your fingers crossed!!

Tuesday, June 12, 2007

School Walks Lead To Memories!

I live in the vicinity of 3 schools, and this time of year with the weather being nice and school winding down, I see many "walking" field trips to the nearest ice cream place or restaurant. Today I saw two groups of kids, one in the morning, and then one again this afternoon. The kids are well behaved, for what I could tell, and they looked like they were just enjoying the stroll!

The second group of kids belonged to my former 4th grade teacher, Mrs. P. I can't believe she is still teaching, although she is by no means ancient. Actually, I feel like the ancient one! I went to a Catholic grade school, where I still go to church today, and it was only 2 blocks away from where I used to live and live now. Mrs. P. was the first in a series of new teachers I had from 4th grade to 7th. Mrs. P. was a great teacher, but there was soooo much work to do for her class that I started heart palpitations that year. I had to wear a holter monitor for a week, and I was supposed to press the button every time I felt my heart skip a beat. Of course, the button was so darn hard to push, that the test went no where. The results were inconclusive. After school was over for the year, my palpitations started disappearing. It was then that we learned just how much stress can play on your physical well-being!

But, back to Mrs. P. We used to do such fun projects for her class. We were required to do 4 book reports throughout the year. But not just read the book, and write a report. Well, that was the requirement for the first book. The other books, we had to focus on a character, and make a replica of that character. I remember doing Mowgli from The Jungle Book out of cardboard. My mom traced me, and then I drew his face and hair, but we put real shorts on him. For another report, we had to focus on the setting. I did the Emerald City, from The Wizard of Oz. I painted milk cartons green, and used aluminum foil for shiny additions. I know I had 2 other book reports, but I can't remember what I did them on. I'm surprised I even remember what I did for the two I just wrote about!

One of the funniest memories about Mrs. P. (maybe not funny to her!) was the time she pile-drived the statue of Mary in our classroom to the floor. It was an accident, but she was so upset about it! Poor Mary's head broke off. Somehow she was fixed (a little glue, perhaps?), but I guess it was funny because we had never seen a teacher have such a mishap like that before! I think it showed us that teachers were human, too!

So anyway, the walks of school students around this time of year make me smile, but are also a bit nostalgic. I used to try going for walks with my preschool kids when I taught. The building I taught is also a block away from me, so we'd wander my neighborhood. There were times, though, that I am surprised I even made the walk. I was so tired, my heart pounding, no matter how slow I was going. I don't miss those days, in that respect! But I do miss walking with the preschool children and pointing out everything they saw. That was rather cute!

Well now I feel like I'm rambling, so that's enough on school memories and walking!


Baby daisies starting to grow out in the backyard.

Red daisies in my neighbor's yard, I love them!!
Really cool purple flowers in my neighbor's yard. She told me what they were, but I can't remember!! Starts with a C though!
I have been taking alot of pictures lately of flowers. My camera is soooo awesome, the pictures come out incredible, and I can't believe that I took it! I'm hoping in another couple weeks to go to the Rose Garden in Hyde Park here. The flowers would be just gorgeous! Maybe I'm starting a new hobby??

Friday, June 08, 2007

Where'd The Week Go??

It's hard to believe it's already Friday. The week just flew! Tuesday I was out most of the day, getting bloodwork done, and then shopping for things I needed. I also bought my cute little niece her birthday present. I got her a lawnmower that blows bubbles! She is going to love it, and I have a feeling the dog will love it, too. Cleo is crazy!

Wednesday was kinda blah, but my mom and I went to get some groceries, and that was the extent of it.

Thursday was interesting. Joseph had come in the morning (again, he did Wednesday, too) for the rest of his stuff. Because I was spying, I called my mom to let her know he was here. After about 15 minutes, I saw her on the sidewalk when he was putting a big box in his van. She asked for the keys, and then she just let it all out! She asked why did he do this, she said he thought he was a nice guy and then she flat out called him a liar and a cheater. He was responding so quietly to her that I wanted to yell out the window, "Joseph, speak up!!" He went on and on with excuse after excuse: he lost his job, he is looking for work, he has 2 kids to support b/c it's the law, blah blah blah. My mom even asked him how he was supposed to get married again, and he said "My fiancee has money." Ooooooh if that woman knew he said that, I am sure she would have flattened him against the wall! Anywho, he moved out all his crap, except for a big tv, and since he couldn't find anyone to get it out, it's officially ours. I'm just glad he's gone!! The rest of my Thursday included visiting Mandy for a few minutes on the way to my dentist. And then having a horrible cleaning from a new chick who made me bleed. I don't think she has a gentle bone in her body. My fault, though, I did not speak up and say something, but I will remember to make sure next time that I ask if the my regular girl will actually be there for my appt. If not, I'm cancelling!!

Today, I had a wonderful morning/early afternoon! I met this man who I had been tutoring with online for several years. First we tutored through AOL, and then through a new program called PATH. Anyway, Dave and his wife, Anita, came to the Falls this weekend for a mini-vacation, and he asked if I'd like to get together for lunch. So we did! He was soooo not who I was picturing when we met, and he said the same thing about me. He actually thought that since I had said before that I was "retired," I would have been in my 70s. I find that so funny!! We had a fabulous lunch together, and we just talked about so many things. I had a great time, and I'm glad I got to meet him and his wife! He is the second person I've met who I tutor with, so it was exciting!

This weekend will be pretty busy. Hailey's birthday party is tomorrow afternoon. They are having it early since they don't know exactly when the baby will decide to make his arrival. And now on Sunday, I think I might see my friend, Renee, and her hubby! That will be fun, too!

Oh, and how could I forget?? I found out on Wednesday that I was approved for Revatio by my insurance!! And now I'm waiting for a call from Accredo so they can set up a delivery date. I'm hoping I'll get it next week! I'm happy, I really hope this will help me out a bit more with exercising and energy. Cross your fingers and wish me luck! :)

Monday, June 04, 2007

Apartment For Rent!!

Today was court day, again, for my mom vs. Joseph. For some reason, I had a bad feeling about it, but I don't know exactly why. I might have felt bad, but it had nothing to do with Joseph. I ended up waking up this morning with a terrible migraine. So I didn't end up going to court with my mom. However, she came to my house after court with a huge smile on her face, and paperwork for Joseph's eviction!! Whoo hoooo!!!

My mom said Joseph never showed up in court. SHOCKER!! So she won automatic eviction. My mom called the City Marshals again, and the guy came over this afternoon to serve Joseph. When he went up there, apparently the door was open, so the City Marshal knocked a few times and called out. He walked around the apartment and then taped the eviction notice on the door. He told us that he would be back on Friday at 10:30am, so that we can move Joseph's crap out of the apartment if Joseph doesn't show up before then. My mom just plans on moving his stuff (which is not a whole lot, the City Marshal said, just a blowup bed, and some clothes) into the basement. After the City Marshal leaves on Friday, I'm allowed to start using the deadbolt. Joseph won't be able to get his crap unless my mom is here. So there!

So that leaves the apartment available again. I just hope that my mom does alot of things different when she rents it out again. There is so much she should have done that might have saved her from dealing with a situation like Joseph. Although, even if she did some things she should have done, it's not a guarantee that Joseph dishonesty wouldn't have happened. And won't happen again. I just wish someone I knew could actually move up there!! Then we might not have problems!!