Aggravation On A Monday!!

I woke up this morning all excited about calling the office of the PH specialist here in Buffalo. I am getting my Revatio tomorrow from Accredo, so I needed to call to see when I might be able to come in an take the first dose. I stated before that my PH specialist at the Cleveland Clinic likes to have patients starting Revatio to come in to take the first dose. They monitor blood pressure, and check other stats for a couple hours after taking it, to make sure the patient is ok on it. Being that the Clinic is a bit over a 3 hour drive from my house, going back there to take one pill is a bit inconvenient. So, I had asked about taking it at the office of the specialist here, and my doctor said that would be fine.

So, I called this morning, and the nurse manager for patients on Revatio told me that I would have to start the pill with my own doctor, since he is the one who is going to be monitoring me. She didn't even seem to care that I have to drive 3 hours for one pill. She did seem surprised that I have to even go into an office to take the first dose, and honestly, it surprises me, too. I'm all for my doctor and Cleveland playing it safe and monitoring someone new on this medicine, but when I have to drive all that way to do it, it's rather aggravating to say the least!

Anyway, I put a call into my PH specialist's nurse, and hopefully she'll get back to me today about it. I just don't have time to drive to Cleveland any time soon. So although I'll be getting Revatio tomorrow, it looks like I still won't be taking it any time soon. UGH!!!!!

Comments

Post a Comment

Popular posts from this blog

Health Changes

 I finally thought I was making progress with my anxiety that had ramped up again back in November of last year. It's been a very long road of not feeling good, trying to increase the Remeron, trying to learn once again that my life is worth a whole lot of SOMETHING. The tremendous loss of my mom, my grandma, a couple of dear phriends, and the nursing home volunteering put a huge pressure of my value of what my life is supposed to be like. However, I had finally started to turn that around. In June, I was robbed (another story for another time, maybe), and on that day I figured that out, I realized I wasn't anxious at all. I was pumped with adrenaline that whole day since I was so angry, so I thought for sure the anxiety would be back again, but it wasn't. And for at least a month and a half, it's been pretty decent. I've been so thankful for that.  But in the last several weeks, I don't know what has happened to my body, especially my abdominal area, but I have
Read more

My Most Inspiring Possession

Image
A dear friend named Judi, whose journal I've been reading for years, has brought back her ARTSY ESSAY CONTEST ! I'm very excited about this, and hope that others will read the wonderful essays already posted in Judi's blog! Here is the topic for this month's new installment: What is your favorite and most inspiring possession? Tell us about it, and if you want an extra creative challenge... tell us about it without naming it until the very last sentence of your essay:):):) I own alot of possessions. When I first moved out of my parents' house, almost 9 years ago, I took this possession with me. It was mine, I had bought it, but I did allow the other members of my family to use it from time to time while I was at home. This possession has been a tremendous outlet for me to do a wide variety of things. I was able to record the barking of our first family dog, something that was cherished when she sadly died way too early for her doggy lifespan. I also was able to save
Read more

The Ideal Day

Once again, it's that time of month for dear Judi's Artsy Essay Contest! Please see the rules and regulations for this month here . I entered a couple month's ago when Judi decided to revive this wonderful contest, and decided I'd like to give it a shot this month! Here goes! My Ideal Day My ideal day would start out at 7am to get ready for work, instead of getting up to take a pill. My ideal day would be going to work as a teacher, instead of wondering if I'd feel well enough to do anything for that day. My ideal day would be working out at a gym, instead of hoping to have enough energy to just walk for 6 minutes on the treadmill at home. My ideal day would be to freely walk about around my home and in public, instead of being tethered to a plastic tube going into my nose, providing oxygen to keep me going. My ideal day would be remembering meeting times with friends or family, instead of keeping track of the 8 different times I need to take a pill or vitamin in
Read more