Welcome to the ramblings of a girl with Pulmonary Hypertension..sharing the ups and downs of this disease, and just about anything else I want to share! Enjoy, and thanks for visiting! :)
Oral Medication IV
Adcirca (tadalafil or Cialis), was FDA-approved to treat PH symptoms in 2009. It works the same way Revatio works. The difference is that Adcirca is taken once a day, whereas Revatio is taken three times a day.
Another summer-like day in October happened today, and that was alright with me! I am loving this weather, although I am very aware that it will end soon enough. I haven't yet switched over my wardrobe, and plastic hasn't been sealed up over the windows. I'm still hoping I can hold off on that for another couple weeks. We'll see!
Today, I had a PH support group meeting. I've sort of lost count of how long I've run this support group, but I know it's well over 10 years. I enjoy having meetings, because I get to see my phriends! But, I REALLY enjoy the meetings where I have a speaker, which I've had for almost all the meetings this year. It's very hard to come up with new topics after having a support group for so long, especially when not too many new people show up, or come once and then never again. I have repeated a few topics, but there are still a few that I haven't had at all. So, I need to prepare for next year's meetings soon so I can…
The good news of the day is that I didn't have any headaches!! Yay!!
The bad news of the day is that I somehow injured the right side of my neck when I turned over in bed this morning while trying to wake up. I can hardly turn to the right, and I have a hard time looking down. All day I've been putting heat and ice on my neck, and I've taken a couple Tylenol Arthritis, which haven't done too much. I've taken a couple naps, too. It was just disappointing, to actually finally be headache free for one day, and then still not be able to do much because I hurt my damn neck. The first time I went to lay down with the heating pad on, I was soooo tired, and I just had tears coming down my face. I don't usually have the "woe is me" attitude, but it's just been a really tough almost 2 weeks to deal with in not feeling well, and I was just so hoping today would finally be a good day. Ahhhhhhhhhhhhhhhhhhhhhhhhh!!!!! I should really try to scream out loud, may…
In the event of an emergency, PH patients really should be prepared with a variety of things needed to insure their safety and well-being. I was reading the Emergency 101 Tips on the PHA website (which can be found here), and I just thought I would re-write the Readiness Checklist. I admit that, while I am ready with most of the information included in this checklist, I don't have everything. I need to do that!!
*I wear a Medic Alert identifier to convey critical health information. I’ve included “Pulmonary Arterial Hypertension,” and such applicable information as “Do Not Stop Pump,” “On Sildenafil -No Nitrates” and/or “Takes Coumadin”
*I always carry a cell phone and/or let people know where I am going if I am traveling alone. I have signed up for a roadside assistance program.
*I maintain a current list of all of my medications. I’ve included concentrations, doses and rates for infusion and/or oxygen therapy.
*I have a three day supply of all my medications and supplies. I keep it …