Welcome to the ramblings of a girl with Pulmonary Hypertension..sharing the ups and downs of this disease, and just about anything else I want to share! Enjoy, and thanks for visiting! :)
Oral Medication IV
Adcirca (tadalafil or Cialis), was FDA-approved to treat PH symptoms in 2009. It works the same way Revatio works. The difference is that Adcirca is taken once a day, whereas Revatio is taken three times a day.
Another summer-like day in October happened today, and that was alright with me! I am loving this weather, although I am very aware that it will end soon enough. I haven't yet switched over my wardrobe, and plastic hasn't been sealed up over the windows. I'm still hoping I can hold off on that for another couple weeks. We'll see!
Today, I had a PH support group meeting. I've sort of lost count of how long I've run this support group, but I know it's well over 10 years. I enjoy having meetings, because I get to see my phriends! But, I REALLY enjoy the meetings where I have a speaker, which I've had for almost all the meetings this year. It's very hard to come up with new topics after having a support group for so long, especially when not too many new people show up, or come once and then never again. I have repeated a few topics, but there are still a few that I haven't had at all. So, I need to prepare for next year's meetings soon so I can…
In the event of an emergency, PH patients really should be prepared with a variety of things needed to insure their safety and well-being. I was reading the Emergency 101 Tips on the PHA website (which can be found here), and I just thought I would re-write the Readiness Checklist. I admit that, while I am ready with most of the information included in this checklist, I don't have everything. I need to do that!!
*I wear a Medic Alert identifier to convey critical health information. I’ve included “Pulmonary Arterial Hypertension,” and such applicable information as “Do Not Stop Pump,” “On Sildenafil -No Nitrates” and/or “Takes Coumadin”
*I always carry a cell phone and/or let people know where I am going if I am traveling alone. I have signed up for a roadside assistance program.
*I maintain a current list of all of my medications. I’ve included concentrations, doses and rates for infusion and/or oxygen therapy.
*I have a three day supply of all my medications and supplies. I keep it …
Last Thursday was Valentine's Day, and the day after that, Judi happened to post the topic for February's Artsy Essay Contest! What a coincidence! So I've decided to write about my dream "date" that I had Valentine's Day evening for the contest!
He arrived around 8pm, with a dozen roses and a cute cartoon with his cartoon character, Diggedy, looking at a heart that said "Happy Valentine's Day xoxox Love." I smiled immediately, and thanked him for the sweet gifts. He asked me how my day was, and we chatted for a little while about my phriend who, I found out very shortly before he arrived, had passed away. He wanted to know a little about her, and I found it comforting that he cared enough to ask about someone who meant alot to me and he didn't even know. After a little while, I told him I didn't want to be a downer all evening, and asked where he was taking me. He told me he had several surprises lined up, and off we went to our first des…