When I was 9 months old, I was diagnosed with congenital heart disease (atrioventricular canal, to be exact, and pulmonary hypertension. I was most likely born with the 2 holes in my heart, and the PH developed very soon after, or I could've had both at the same time and it was missed until I was 9 months. Who knows really? I guess it doesn't really matter at this point! Anyway, for my entire childhood and young adulthood, the main focus was always on my heart. I had plenty of appointments with my pediatric cardiologist, and if I had to guess, over 150 echoes in my life so far. My heart has been in pretty stable condition for a very long time, and I'm so thankful for that! I find it ironic that after we started focusing on the pulmonary hypertension part of my condition in 2002, I sometimes forget about the congenital heart disease I've got going on. When I talk to people, I always describe PH, the symptoms, the treatments, etc, but I forget to say WHY I have PH in the ...
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