All Things PH

The first weekend of May will be mostly PH-related for me. Saturday will be my PH support group meeting, and we'll be discussing the benefits of pulmonary rehab. I'm happy that someone from the rehab center I go to will talk to my group, and even show us the gym because the meeting is in the same hospital I go for rehab, and the meeting room is right down the hall from it! The group should go well, and I'm happy to be seeing many of my regulars at the meeting. I only do them twice a year now, so it's always nice to see the familiar faces, although newbies are always more than welcome, too!

At some point Sunday, my parents and I will be driving to Cleveland. We usually need to stay the night since my appointments are never late enough for us to just drive there in the early morning. Unless we want to get up at 4am to leave by 4:30. Nooooooo thank you. Monday will be my tests and doctor visits. I'm not expecting any surprises. And yet I keep saying that, and watch, something will alarm them enough to either increase a med I'm on or add one. I'm hoping not! Despite the emotional roller coaster I've been on in the last year, and especially in the last couple months, I've physically been doing ok. I attribute so much of it to rehab. I'm very thankful that my doctors said to go for it, and I'm so glad it's close enough to my house that I'm able to go twice a week. I think it does wonders for my body, but also my mind. The people I workout with are just great, and the hour I spend there goes by pretty quick! So I feel all that has made a big impact on allowing my health and my PH be pretty stable in the last year and a half. I can only pray that it continues to go that way!

The only test I really despise is the 6 minute walk (6mw). I don't care how well I'm doing all year long, or while walking on the treadmill. That 6 minutes is the longest and the most tiring in the entire year!! lol I'm really happy my doctor doesn't base my entire health on that test, because it sure does not represent how I'm doing in my daily life. Of course, I'm going to do the best I can, but it's just not something I look forward to. I wish they'd let me listen to my headphones during that time. I'd find it a bit more tolerable if they could. lol

Comments

Cindy / Aka Chymecindy said…
I came across the blogsphere and found your blog. I Like it so much!
12:34 PM
Teddybear said…
Colleen I will be praying for you Sunday and Monday. I am sure the ride isn't any fun either. I will pray that you don't have to have a med increase or one added. As for that 6 mwk I'm there with you I can't stand them either. My walks are getting worse but that's my normal.

I will pray for traveling mercies back home as well, Love Ya Deb.
7:43 PM
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