Welcome to the ramblings of a girl with Pulmonary Hypertension..sharing the ups and downs of this disease, and just about anything else I want to share! Enjoy, and thanks for visiting! :)
Go Bo!!
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AOL has Bo Bice's new single available to listen to. I listened to Vehicle, and I must say I love it!! Have a listen, if you'd like!
Once again, it's that time of month for dear Judi's Artsy Essay Contest! Please see the rules and regulations for this month here . I entered a couple month's ago when Judi decided to revive this wonderful contest, and decided I'd like to give it a shot this month! Here goes! My Ideal Day My ideal day would start out at 7am to get ready for work, instead of getting up to take a pill. My ideal day would be going to work as a teacher, instead of wondering if I'd feel well enough to do anything for that day. My ideal day would be working out at a gym, instead of hoping to have enough energy to just walk for 6 minutes on the treadmill at home. My ideal day would be to freely walk about around my home and in public, instead of being tethered to a plastic tube going into my nose, providing oxygen to keep me going. My ideal day would be remembering meeting times with friends or family, instead of keeping track of the 8 different times I need to take a pill or vitamin in ...
When I was 9 months old, I was diagnosed with congenital heart disease (atrioventricular canal, to be exact, and pulmonary hypertension. I was most likely born with the 2 holes in my heart, and the PH developed very soon after, or I could've had both at the same time and it was missed until I was 9 months. Who knows really? I guess it doesn't really matter at this point! Anyway, for my entire childhood and young adulthood, the main focus was always on my heart. I had plenty of appointments with my pediatric cardiologist, and if I had to guess, over 150 echoes in my life so far. My heart has been in pretty stable condition for a very long time, and I'm so thankful for that! I find it ironic that after we started focusing on the pulmonary hypertension part of my condition in 2002, I sometimes forget about the congenital heart disease I've got going on. When I talk to people, I always describe PH, the symptoms, the treatments, etc, but I forget to say WHY I have PH in the ...
Choose a book and open it to a random page and point to a phrase. Use that phrase to get you writing today. Free write for 15-20 without stopping. I am currently reading Mitch Albom's, Tuesdays With Morrie . I opened it to where I placed my bookmark last night, circled my pointy finger around in the air, looked away from the book and place my finger down on it. This is what I read: " What happened to me? I asked myself." If someone told me when I was in grade school that I would eventually lose the huge eyeglasses that took up half my face, that I'd be more outspoken that I was during that time, and that I'd be helping countless people learn about a crappy disease, I would have just stood there in shock not believing a word you were saying. But when I think back to my younger days, I really can ask "What happened to me??" I used to not say a peep in the classroom. I was incredibly shy when I was invited to a party, usually sticking to the walls o...
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