Time To Go To Cleveland Once Again

I will be leaving tomorrow afternoon for Cleveland. The trip is usually about 3 1/2-4 hours, depending on how much we stop. Tomorrow the weather is supposed to be terrible, so we will definitely be taking time to get there. I don't know what I'm more worried about, the fact we'll be getting there in a snowstorm, or my appointments on Monday. lol I have been praying like crazy that our trip will be a safe one!! Coming home on Monday shouldn't be a problem, but getting there might be.

As for my appointments, I'm having such mixed emotions about it. It's been a really sucky winter, with the pneumonia. And I know I'm still recovering from it. I don't have alot of energy back yet, and my lung still bugs me almost every day. It hasn't been too bad lately, but I can tell it's not 100% yet. And although I know the pneumonia has put me back about 100 steps, I still am worried that he might make other suggestions for treatment already. I really can't tell if Revatio has been working. I kinda think it was, especially when I was able to decorate for Christmas the day after Thanksgiving all in one day with no major problems! But then a few weeks later, I was told I had pneumonia, and bam! I felt like I fell down the small hill I had just climbed, and I've been struggling to get back up ever since. I know the 6 minute walk will probably tell alot, even though that is the test I absolutely hate with all my being. lol So I am just worrying about exactly will happen on Monday, even though I know that I shouldn't be! If I am progressing with my PH, I need to know, my doctor needs to know. If I am, we need to figure out what the next step should be. But if this is all still part of recovering from pneumonia, then we need to know this, too. So I am just hoping not to go insane from thinking about all this before Monday. lol

On a hopeful note, I am really hoping that I'll get to meet a phriend from the boards on Monday!! Merle and I have the same PH specialist, and she also has her appointments on Monday. She has them a bit later than I do, but nothing is ever on time at the Clinic, so maybe we'll get to meet each other for a bit!! That would be so neat! I'm bringing my camera just in case! hehe

Well I am going to try getting to bed. I will post about my trip when I get back!

Comments

Becoming Catholic said…
I wish I could meet Merle and you both! We all have doctor anxiety...I hate to go! It is just a reminder of what we are really dealing with here...remember you are not alone in your fears and everything will be okay...take it one day at a time and take your walk as slow as you need to...I will be thinking of you!
2:24 PM
Anonymous said…
Have a safe trip. I will pray that you get good news and hope this is all just part of that Pneumonia.
It is so nervous for me too for each appt even though I love my doc,its just the not knowing what to expect.
Give Merle a hug and I hope you two get to have a nice meeting..Yes please take pics!!
Will be waiting for a report after you get back and rest.
Hugs,
Jen
11:09 PM
BLAZER PROPHET said…
I hope your trip was eventful, in a good way. Also, glad to see that you met your goal on the fundraising site.

My daughter (age 26) was diagnosed with PH about 9 months ago and has rapidly declined. She starts Flolan in 1 week or so.

Lastly, on a political note, I realize Bush hasn't been a good president, but I wish him well when he leaves office. We've had a string of stinkers lately, but they are all well meaning.
7:41 PM
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