Time To Go To Cleveland Once Again

I will be leaving tomorrow afternoon for Cleveland. The trip is usually about 3 1/2-4 hours, depending on how much we stop. Tomorrow the weather is supposed to be terrible, so we will definitely be taking time to get there. I don't know what I'm more worried about, the fact we'll be getting there in a snowstorm, or my appointments on Monday. lol I have been praying like crazy that our trip will be a safe one!! Coming home on Monday shouldn't be a problem, but getting there might be.

As for my appointments, I'm having such mixed emotions about it. It's been a really sucky winter, with the pneumonia. And I know I'm still recovering from it. I don't have alot of energy back yet, and my lung still bugs me almost every day. It hasn't been too bad lately, but I can tell it's not 100% yet. And although I know the pneumonia has put me back about 100 steps, I still am worried that he might make other suggestions for treatment already. I really can't tell if Revatio has been working. I kinda think it was, especially when I was able to decorate for Christmas the day after Thanksgiving all in one day with no major problems! But then a few weeks later, I was told I had pneumonia, and bam! I felt like I fell down the small hill I had just climbed, and I've been struggling to get back up ever since. I know the 6 minute walk will probably tell alot, even though that is the test I absolutely hate with all my being. lol So I am just worrying about exactly will happen on Monday, even though I know that I shouldn't be! If I am progressing with my PH, I need to know, my doctor needs to know. If I am, we need to figure out what the next step should be. But if this is all still part of recovering from pneumonia, then we need to know this, too. So I am just hoping not to go insane from thinking about all this before Monday. lol

On a hopeful note, I am really hoping that I'll get to meet a phriend from the boards on Monday!! Merle and I have the same PH specialist, and she also has her appointments on Monday. She has them a bit later than I do, but nothing is ever on time at the Clinic, so maybe we'll get to meet each other for a bit!! That would be so neat! I'm bringing my camera just in case! hehe

Well I am going to try getting to bed. I will post about my trip when I get back!

Comments

Becoming Catholic said…
I wish I could meet Merle and you both! We all have doctor anxiety...I hate to go! It is just a reminder of what we are really dealing with here...remember you are not alone in your fears and everything will be okay...take it one day at a time and take your walk as slow as you need to...I will be thinking of you!
2:24 PM
Anonymous said…
Have a safe trip. I will pray that you get good news and hope this is all just part of that Pneumonia.
It is so nervous for me too for each appt even though I love my doc,its just the not knowing what to expect.
Give Merle a hug and I hope you two get to have a nice meeting..Yes please take pics!!
Will be waiting for a report after you get back and rest.
Hugs,
Jen
11:09 PM
BLAZER PROPHET said…
I hope your trip was eventful, in a good way. Also, glad to see that you met your goal on the fundraising site.

My daughter (age 26) was diagnosed with PH about 9 months ago and has rapidly declined. She starts Flolan in 1 week or so.

Lastly, on a political note, I realize Bush hasn't been a good president, but I wish him well when he leaves office. We've had a string of stinkers lately, but they are all well meaning.
7:41 PM
Post a Comment

Popular posts from this blog

My Most Inspiring Possession

Image
A dear friend named Judi, whose journal I've been reading for years, has brought back her ARTSY ESSAY CONTEST ! I'm very excited about this, and hope that others will read the wonderful essays already posted in Judi's blog! Here is the topic for this month's new installment: What is your favorite and most inspiring possession? Tell us about it, and if you want an extra creative challenge... tell us about it without naming it until the very last sentence of your essay:):):) I own alot of possessions. When I first moved out of my parents' house, almost 9 years ago, I took this possession with me. It was mine, I had bought it, but I did allow the other members of my family to use it from time to time while I was at home. This possession has been a tremendous outlet for me to do a wide variety of things. I was able to record the barking of our first family dog, something that was cherished when she sadly died way too early for her doggy lifespan. I also was able to save...
Read more

The Ideal Day

Once again, it's that time of month for dear Judi's Artsy Essay Contest! Please see the rules and regulations for this month here . I entered a couple month's ago when Judi decided to revive this wonderful contest, and decided I'd like to give it a shot this month! Here goes! My Ideal Day My ideal day would start out at 7am to get ready for work, instead of getting up to take a pill. My ideal day would be going to work as a teacher, instead of wondering if I'd feel well enough to do anything for that day. My ideal day would be working out at a gym, instead of hoping to have enough energy to just walk for 6 minutes on the treadmill at home. My ideal day would be to freely walk about around my home and in public, instead of being tethered to a plastic tube going into my nose, providing oxygen to keep me going. My ideal day would be remembering meeting times with friends or family, instead of keeping track of the 8 different times I need to take a pill or vitamin in ...
Read more

Lost

Growing up with pulmonary hypertension and congenital heart disease was sometimes lonely, because there wasn't anyone around me who felt the same way I did physically. No one had to stay out of gym because they got too tired and too short of breath like I did on a constant basis. No one had to wear a holter monitor like the one time I had to in 4th grade. Talk about trying to play mum ball in class, all you could hear was the monitor thing making noise. Although I could always go to sports games, I wasn't able to participate in any type of sport, because again, it was just physically way too much for my body to handle. I didn't really regret any of this. I thought it was just me and my normal. I thought I was the only person out there who really dealt with this kind of thing, but that was ok. I graduated high school, and started college. I worked, went to classes, and in the last year of college, started going out a lot more. I graduated with my education degree, and began ...
Read more