A Little Trip To Cleveland And Some Support Group Joys!

I went to Cleveland Tuesday/Wednesday for a checkup with my PH specialist at the Cleveland Clinic. I mentioned before that I had been worried about going, and that I usually get that way before I go (see THIS if you want to catch up). I'm always worried about going to the doctors! Anyhow, I freaked out for nothing. Yet again! I actually had a pretty good walk, despite feeling like crap that morning. And it wasn't because of my cold. That has pretty much disappeared. But for some reason, I felt a little carsick on the way to the Clinic that morning. And then, the elevator to the 9th floor where the Pulmonolgy department is made me want to hurl. It always does. It's THE worst elevator I've ever been on!! Anyway, back to the walk. I didn't walk as far as the last time (1200 ft v. 1300 ft from May), but I felt a lot better than before. And my oxygen levels were better, too! Instead of dropping to 49% like last time, they dropped to 59%! That's an improvement! Now, if I were a NORMAL person, those numbers would be absolutely horrible. You might as well be comatose or almost dead with oxygen levels that low. However, I am NOT normal! At least when it comes to health, I'm not normal. lol So to make a long story short, my tests went well, and there are no changes to my therapy! Yay!!

Now, as for my support group meeting. Flyers went out last week, and I got my first RSVP on Monday! One person is coming!! And she is bringing her daughter! I was thrilled, I tell ya!! Well, my next big surprise about my support group meeting was the fact that my own PH doctor told me Wednesday that he'd like to come! I couldn't believe it! He'd drive 3 hours for a 2 hour meeting? That's what we asked him (my parents and I), and he said sure! He said his wife would be out of town, so he'd be able to make a trip. I'm holding my breath on it (not literally, that would be bad!), just in case he can't make it. I really hope he can, so we'll see! That would be awesome, though!

When I got home from Cleveland, I had a message from another woman RSVPing for the meeting. And today, I had a guy who left a message saying he might attend. Plus, tonight, I got an email from a woman who said she's coming! I am beyond elated that there are 5 people showing up so far! I am so looking forward to this meeting next Saturday. I think this was one of the best decisions I've made, to start this group. I had only hoped to meet one person with PH, and now it looks like I'll at least be meeting five! I only hope that more will show, whether they RSVP, or just show up. And maybe more will be willing to come in the future!
I have a low-key weekend planned. My big excitement might just be getting my friend's treadmill on Sunday. She offered it to me like a year ago. At first I had no room for it because my sister's was in the basement. But then after they moved, I just hadn't had the time to get it. And I kept forgetting. But now, I can get it, and I'm excited about it! I haven't exercised all summer. And that is horrible, considering last summer I exercised so much for the first time in my life! I had muscles everywhere! I was impressed with myself! Now I'm ashamed, and I'm ready to get back into shape, no matter how long it takes me!

Written by melonlady1724 . Link to this entry
This entry has 1 comments: (Add your own)
I'm so happy your tests came back ok! WTG on your RSVP's and meetings. That's great too. In no time I'm sure you'll have lots of people joining you. WTG! ~ Lori Comment from fitzzer - 10/8/05 11:04 AM

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