A Little Trip To Cleveland And Some Support Group Joys!

I went to Cleveland Tuesday/Wednesday for a checkup with my PH specialist at the Cleveland Clinic. I mentioned before that I had been worried about going, and that I usually get that way before I go (see THIS if you want to catch up). I'm always worried about going to the doctors! Anyhow, I freaked out for nothing. Yet again! I actually had a pretty good walk, despite feeling like crap that morning. And it wasn't because of my cold. That has pretty much disappeared. But for some reason, I felt a little carsick on the way to the Clinic that morning. And then, the elevator to the 9th floor where the Pulmonolgy department is made me want to hurl. It always does. It's THE worst elevator I've ever been on!! Anyway, back to the walk. I didn't walk as far as the last time (1200 ft v. 1300 ft from May), but I felt a lot better than before. And my oxygen levels were better, too! Instead of dropping to 49% like last time, they dropped to 59%! That's an improvement! Now, if I were a NORMAL person, those numbers would be absolutely horrible. You might as well be comatose or almost dead with oxygen levels that low. However, I am NOT normal! At least when it comes to health, I'm not normal. lol So to make a long story short, my tests went well, and there are no changes to my therapy! Yay!!

Now, as for my support group meeting. Flyers went out last week, and I got my first RSVP on Monday! One person is coming!! And she is bringing her daughter! I was thrilled, I tell ya!! Well, my next big surprise about my support group meeting was the fact that my own PH doctor told me Wednesday that he'd like to come! I couldn't believe it! He'd drive 3 hours for a 2 hour meeting? That's what we asked him (my parents and I), and he said sure! He said his wife would be out of town, so he'd be able to make a trip. I'm holding my breath on it (not literally, that would be bad!), just in case he can't make it. I really hope he can, so we'll see! That would be awesome, though!

When I got home from Cleveland, I had a message from another woman RSVPing for the meeting. And today, I had a guy who left a message saying he might attend. Plus, tonight, I got an email from a woman who said she's coming! I am beyond elated that there are 5 people showing up so far! I am so looking forward to this meeting next Saturday. I think this was one of the best decisions I've made, to start this group. I had only hoped to meet one person with PH, and now it looks like I'll at least be meeting five! I only hope that more will show, whether they RSVP, or just show up. And maybe more will be willing to come in the future!
I have a low-key weekend planned. My big excitement might just be getting my friend's treadmill on Sunday. She offered it to me like a year ago. At first I had no room for it because my sister's was in the basement. But then after they moved, I just hadn't had the time to get it. And I kept forgetting. But now, I can get it, and I'm excited about it! I haven't exercised all summer. And that is horrible, considering last summer I exercised so much for the first time in my life! I had muscles everywhere! I was impressed with myself! Now I'm ashamed, and I'm ready to get back into shape, no matter how long it takes me!

Written by melonlady1724 . Link to this entry
This entry has 1 comments: (Add your own)
I'm so happy your tests came back ok! WTG on your RSVP's and meetings. That's great too. In no time I'm sure you'll have lots of people joining you. WTG! ~ Lori Comment from fitzzer - 10/8/05 11:04 AM

Comments

Post a Comment

Popular posts from this blog

Health Changes

 I finally thought I was making progress with my anxiety that had ramped up again back in November of last year. It's been a very long road of not feeling good, trying to increase the Remeron, trying to learn once again that my life is worth a whole lot of SOMETHING. The tremendous loss of my mom, my grandma, a couple of dear phriends, and the nursing home volunteering put a huge pressure of my value of what my life is supposed to be like. However, I had finally started to turn that around. In June, I was robbed (another story for another time, maybe), and on that day I figured that out, I realized I wasn't anxious at all. I was pumped with adrenaline that whole day since I was so angry, so I thought for sure the anxiety would be back again, but it wasn't. And for at least a month and a half, it's been pretty decent. I've been so thankful for that.  But in the last several weeks, I don't know what has happened to my body, especially my abdominal area, but I have
Read more

My Most Inspiring Possession

Image
A dear friend named Judi, whose journal I've been reading for years, has brought back her ARTSY ESSAY CONTEST ! I'm very excited about this, and hope that others will read the wonderful essays already posted in Judi's blog! Here is the topic for this month's new installment: What is your favorite and most inspiring possession? Tell us about it, and if you want an extra creative challenge... tell us about it without naming it until the very last sentence of your essay:):):) I own alot of possessions. When I first moved out of my parents' house, almost 9 years ago, I took this possession with me. It was mine, I had bought it, but I did allow the other members of my family to use it from time to time while I was at home. This possession has been a tremendous outlet for me to do a wide variety of things. I was able to record the barking of our first family dog, something that was cherished when she sadly died way too early for her doggy lifespan. I also was able to save
Read more

The Ideal Day

Once again, it's that time of month for dear Judi's Artsy Essay Contest! Please see the rules and regulations for this month here . I entered a couple month's ago when Judi decided to revive this wonderful contest, and decided I'd like to give it a shot this month! Here goes! My Ideal Day My ideal day would start out at 7am to get ready for work, instead of getting up to take a pill. My ideal day would be going to work as a teacher, instead of wondering if I'd feel well enough to do anything for that day. My ideal day would be working out at a gym, instead of hoping to have enough energy to just walk for 6 minutes on the treadmill at home. My ideal day would be to freely walk about around my home and in public, instead of being tethered to a plastic tube going into my nose, providing oxygen to keep me going. My ideal day would be remembering meeting times with friends or family, instead of keeping track of the 8 different times I need to take a pill or vitamin in
Read more