Cleveland Trip

I got back from my trip to the Cleveland Clinic late this afternoon. I just feel so exhausted because it's a long trip for just 2 days! Well, just a lot of driving. Anyhow, my appointments went well. Tuesday was the cardiologist. He told me my heart looked good, and that if I were to have a transplant, my heart was still in good shape to just be repaired and not replaced. That's comforting to know, that I wouldn't need a heart if it were to ever happen. I also learned something new, the reason why my PH is so different from others. It basically boils down to the fact that because I have 2 holes in my heart, the blood can shunt (or divert) back and forth to help release pressure in my lungs. The way my PH specialist explained it, I'm actually at an advantage over people who develop PH with normal hearts. So, in a way, I'm lucky that I do have the holes! And, I now totally understand why I could not just have the holes closed without doing anything about my lungs. It would make the problem much worse. Ding ding ding! Light bulb going on in my head!!

This morning was my walking test, and I have to say I'm petrified every time I have to do it. I'm always so scared that I won't be able to finish, that I'll do horrible, that my symptoms will come back even worse than before. So, waiting to do the test can be awful for me! I was so nervous waiting, but it ended up being for nothing. My walk was actually a little better than the last time!! Yay! I walked just a bit farther, and I wasn't horribly out of breath! I did, however, scare the tech who did the walk with me. Apparently she was new, and hadn't done a walk with someone who had PH like I have PH. She said to me that she almost stopped me while walking because my oxygen levels dropped so low. Which is NORMAL for me. Anywhow, my PH doctor had a good laugh about it....actually, almost the entire appointment with him was a ball of laughs! It's so good to have a doctor that I really like, and who is funny!

So that was pretty much my trip. I'm glad it's over, at least for another few months anyway. lol Now I can concentrate on becoming a real aunt!!! I can't wait for my sister to have her baby. Only about a month away now! Yaaay!! :-D

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